Working to raise awareness of Klinefelter's Syndrome
and to provide help and advice to all those affected
Books
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My KS Story
| Date added: | 07/04/2011 |
| Date modified: | 01/31/2012 |
| Filesize: | 7.83 MB |
| Downloads: | 1235 |
Iain W McKinlay 2010
The KS Story
You are not alone
AN INFORMATIVE GUIDE & FURTHER STUDY
The KS Story is the culmination of twelve years ongoing study and an emotional journey through the workings of the congenital chromosome condition Klinefelter’s Syndrome (KS).
The book was created primarily as a conduit to respected support groups, medical specialists and research units, with a chapter devoted to further study, including a comprehensive support address and online section and a selection of books, research papers, medical journals and scientific magazines.
The book also offers a glimpse into the various aspects of Klinefelter’s Syndrome; showing how it affects individuals and those who love, care and treat them.
The KS Story has been compiled by a person with Klinefelter’s Syndrome (karyotype: 47,XXY), from reputable medical, research and support group sources, and with the help and support of several UK and international scientists in the fields of biology, cytogenetics, endocrinology, neuroscience and sexology.
To balance the overwhelming amount of data there is a degree of comic relief in the writing, with a sprinkling of cartoons.
All that is asked, is that you please put aside any preconceived ideas or stereotypes and view the guide with a respectful and open mind.
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News Articles
KSA Activity Weekend 2013
In 2013 we are running TWO Activity Weekends! One in April 5th-7th & one in September 13th-15thWhen: 2 nights, 3 days 2013
Venue: Dukes Barn, Derbyshire.
Cost: £80 for those with KS or under 19, £135 for other Members, £310 for Non-Members.
Please book early as one weekend is half full already and I can run the second one only if there is enough advance interest!
There is more information about Activity Weekends under the Read more.... link below.
Contact me as soon as possible if you want further information or wish to book a place by phone on 01629 534402 or activityweekends@ksa-uk.net
Who's Online
We have 2 guests online2013 Annual Conference & AGM
When: 22nd June 2013.
Venue: Derby YMCA.
Cost: Early Bird £25 pp (before 30 April 2013), then £35 pp
Friday night pre-conference get-together: Travel Lodge, Pride Park Derby.
Conference Agenda
9.00 am Registration opens.
9.50 am AGM
10.15 am Conference Starts
10.15 am Dr. Stanworth: Hormone replacement therapy and other issues
10.55 am Tea & Coffee
11.15 am Prof. Dorothy Bishop: The effect extra sex chromosomes have on language development
11.55 am Toni Shepherd: Autism
12.30 pm Lunch
2.05 pm
Workshop 1: Adult KS men – Dr. Stanworth
Workshop 2: KS, Autism and communication– Toni Shepherd and Dorothy Bishop
Workshop 3: Parents and young people talk with XXY Adults
3.05 pm
Workshop 4 with Dr. Stanworth – for parents and young people
Workshop 5 with Dorothy Bishop and Toni Shepherd
Workshop 6 Informal session
4.00 pm Tea & Coffee
4.20 pm Round-up session & Raffle
5.00 pm Conference ends.
The KSA NEC reserve the right to alter the programme if circumstances require
