Working to raise awareness of Klinefelter's Syndrome

and to provide help and advice to all those affected

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My KS Story My KS Story

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Date added:07/04/2011
Date modified:01/31/2012
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Iain W McKinlay 2010

The KS Story
You are not alone

AN INFORMATIVE GUIDE & FURTHER STUDY

The KS Story is the culmination of twelve years ongoing study and an emotional journey through the workings of the congenital chromosome condition Klinefelter’s Syndrome (KS).

The book was created primarily as a conduit to respected support groups, medical specialists and research units, with a chapter devoted to further study, including a comprehensive support address and online section and a selection of books, research papers, medical journals and scientific magazines.

The book also offers a glimpse into the various aspects of Klinefelter’s Syndrome; showing how it affects individuals and those who love, care and treat them.

The KS Story has been compiled by a person with Klinefelter’s Syndrome (karyotype: 47,XXY), from reputable medical, research and support group sources, and with the help and support of several UK and international scientists in the fields of biology, cytogenetics, endocrinology, neuroscience and sexology.

To balance the overwhelming amount of data there is a degree of comic relief in the writing, with a sprinkling of cartoons.

All that is asked, is that you please put aside any preconceived ideas or stereotypes and view the guide with a respectful and open mind.

What could I be?

Full size imageNewsletter-Autumn-2012

KSA Activity Weekend 2014

You are too late for the  2015 SPRING Activity Weekend which was a huge success so book soon for the next one!

The Next Activity Weekend is the 18th to 20th September 2015.

Extra special rates for families who have never attended one of these hugely successful events!

Existing low rates for adults with KS.

To book or enquire about this fantastic opportunity to meet others with KS and have a great weekend at the same time please email: chair@ksa-uk.net.

 

Don't miss out - book early!!

Special 'Earlybird' price IF BOOKED BEFORE 8th August:

Cost: £80 for those with KS or under 19, £135 for other Members, £310 for Non-Members.

If booked later the costs rise to £90, £145 and £350 respectively.

Please book early as the weekends fill up fast!!

Contact me as soon as possible if you want further information or wish to book a place by phone on 01629 534402 or activityweekends@ksa-uk.net

There is more information about Activity Weekends under Read more... 

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2015 Annual Conference & AGM

When: 6th-7th June 2015
Venue: Derby
Cost:   £40 per day or £60 for both days! 

 

To celebrate our 25th anniversary, the KSA are delighted to announce that Conference 2015 will be bigger and better than ever before!

For the first time the Conference will run for 2 days!!  Following the success of the psychology workshops this year, Saturday will be a dedicated Psychology Day plus a short AGM. On Sunday will be Conference Day - giving everyone more time to talk, listen and learn.  Of course we will still hold the Friday Get-together and, in addition, we can have a super Saturday evening as well.

Conference dates: 5th June - Friday Night Get-together

                                6th June - Psychology day and AGM

                                7th June - Conference day. Speakers include renowned endocrinologist, Richard Quinton.

  For further information and booking form please contact chair@ksa-uk.net

 

 

  


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