Information (Download)

KSA leaflet

(10.10 MB file size)

This contains general information about Klinefelter's Syndrome/XXY.

The 2 pages of the 6 page should be printed back to back in landscape view.

The two pages of the 4 page should be printed back to back in landscape view.

Fold into thirds. Staple on first fold.

Cut off blank section.


Osteoporosis and KS

(1.19MB file size)

The document provides an overview of Osteoporosis and its importance with KS. Please see your doctor/dietician for further details. I recommend you obtain a copy of the booklet: Compston J (2006) Understanding Osteoporosis BMA Family Doctor Series ( By Paul Collingridge

Testosterone Treatment Diary

(95.79 KB file size)

Learning Needs of Children with KS - Information for Teachers & Parents

(115.25 KB file size)

Recent years have seen the tide turning in the ways that boys with Klinefelter’s Syndrome (KS) have settled down at school, this is reflected in the statistics of the Klinefelter’s Syndrome Association survey which pointed out that whilst virtually no adults had attended special schools as children, the figure had risen to around 1 in 3 by 1999. There is still a long way to go; many parents still feel the frustration of battling out for help against cash- strapped education authorities, and many teachers long for insight into the minds of boys with complex needs.


(203 KB file size)

This document provides information and guidance on applying for Employment and Support Allowance

The Psychological and Social Impact of Klinefelter's Syndrome: Report for the KSA

(130.50 KB file size)

Executive Summary, by Marianne Morris, Sue Jackson & Jude Hancock, University of the West of England 2009
(Full report available to Members of the KSA)

"It's your hormones". A qualitative exploration of men's experiences of Klinefelter's syndrome

(126.50 KB file size)

Klinefelter’s Syndrome (KS) is a genetic condition affecting men. It has the potential to:

  • severely reduce testosterone levels
  • affect physical appearance and sexual development and function
  • affect learning and educational development

Attribution Matters: The Impact of Klinefelter's Syndrome on Psycho-social Functioning

(138.00 KB file size)

Much of the research on KS has been directed at understanding the cognitive impact even though biomedical researchers and condition specialists continually acknowledge the psychological impact this condition has and the need to address these issues.

Is the prevalence of Klinefelter’s syndrome increasing?

(105.29 KB file size)

An abridged version by Povl Larsen of a paper by Joan K Morris†, Eva Alberman, Claire Scott, Patricia Jacobs, which was the basis for Dr Jacobs presentation at the KSA Conference 2007.

Treatment Satisfaction Survey Executive Summary

(80.38 KB file size)

Klinefelter’s Syndrome Treatment Satisfaction Survey

Executive Summary for the Klinefelter’s Syndrome Association
(Full report available to Members of the KSA)

Authors: Georgina Ruddle, Sue Jackson & Marianne Morris
University of the West of England

Klinefelters Syndrome - An Overview

(74.40 KB file size)

The collection of symptoms known as Klinefelter syndrome was first put together in 1942 by a young doctor in Philadelphia called Harry Klinefelter(1). He described 9 men who had breast development, small testicles with no sperm in their semen, and a blood test revealed raised levels of the factors (gonadotrophins) which try to stimulate the testicles to produce more of the male hormone (testosterone) and greater numbers of sperm.

KSA Survey of Members - A Brief Summary

(427.66 KB file size)

In 1999 the KSA carried out a survey of its members to gain a better understanding of their experiences, i.e. "how I got to where I am today". The aim was to give some pointers for further research.

This summary is simply the first stage in what could prove to be a long and challenging series of investigations, we have a long way to go, but with your help we could make a real difference.