Working to raise awareness of Klinefelter's Syndrome

and to provide help and advice to all those affected

Research

Documents

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Treatment Satisfaction Survey Executive Summary Treatment Satisfaction Survey Executive Summary

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Date added:09/23/2011
Date modified:09/23/2011
Filesize:80.38 kB
Downloads:527
Georgina Ruddle, Sue Jackson & Marianne Morris, University of the West of England 2011

Is the prevalence of Klinefelter’s syndrome increasing? Is the prevalence of Klinefelter’s syndrome increasing?

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Date added:07/10/2011
Date modified:07/10/2011
Filesize:105.29 kB
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An abridged version by Povl Larsen of a paper by Joan K Morris†, Eva Alberman, Claire Scott, Patricia Jacobso - which was the basis for Dr Jacobs presentation at the KSA Conference 2007

Attribution Matters:  The Impact of Klinefelter's Syndrome on Psycho-social Functioning Attribution Matters: The Impact of Klinefelter's Syndrome on Psycho-social Functioning

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Date added:07/03/2011
Date modified:07/03/2011
Filesize:138 kB
Downloads:704
Sue Jackson & Marianne Morris, University of the West of England 2009

"It's your hormones". A qualitative exploration of men's experiences of Klinefelter's syndrome "It's your hormones". A qualitative exploration of men's experiences of Klinefelter's syndrome

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Date added:07/03/2011
Date modified:07/03/2011
Filesize:126.5 kB
Downloads:592
Marianne Morris, Sue Jackson & Judith Hancock (University of the West of England, Bristol).

The Psychological and Social Impact of Klinefelter's Syndrome: Report for the KSA The Psychological and Social Impact of Klinefelter's Syndrome: Report for the KSA

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Date added:07/03/2011
Date modified:07/04/2011
Filesize:130.5 kB
Downloads:782

Executive Summary, by Marianne Morris, Sue Jackson & Jude Hancock, University of the West of England 2009
(Full report available to Members of the KSA)

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The Psycho-educational Profile of Boys with Klinefelter Syndrome The Psycho-educational Profile of Boys with Klinefelter Syndrome

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Date added:07/03/2011
Date modified:07/04/2011
Filesize:81.92 kB
Downloads:674
Joanne Rovet, Charles Netley, Maureen Keenan, John Bailey, and Donald Stewart, summarised by Sasha Hewlett (KSA).

What could I be?

Full size imageWhat can I be?

KSA Activity Weekend 2013

 In 2013 we are running TWO Activity Weekends! One in April 5th-7th & one in September 13th-15th

When: 2 nights, 3 days 2013
Venue: Dukes Barn, Derbyshire.
Cost: £80 for those with KS or under 19, £135 for other Members, £310 for Non-Members.

Please book early as one weekend is half full already and I can run the second one only if there is enough advance interest!

There is more information about Activity Weekends under the Read more.... link below.

Contact me as soon as possible if you want further information or wish to book a place by phone on 01629 534402 or activityweekends@ksa-uk.net

Read more...

Who's Online

We have 2 guests online

2013 Annual Conference & AGM

When: 22nd June 2013.
Venue: Derby YMCA.
Cost: Early Bird £25 pp (before 30 April 2013), then £35 pp

Friday night pre-conference get-together: Travel Lodge, Pride Park Derby.  

Conference Agenda

9.00 am Registration opens.

9.50 am AGM

10.15 am Conference Starts

10.15 am Dr. Stanworth: Hormone replacement therapy and other issues

10.55 am Tea & Coffee

11.15 am   Prof. Dorothy Bishop: The effect extra sex chromosomes have on language development

11.55 am   Toni Shepherd: Autism

12.30 pm   Lunch

2.05 pm

Workshop 1: Adult KS men – Dr. Stanworth

Workshop 2: KS, Autism and communication Toni Shepherd and Dorothy Bishop

Workshop 3: Parents and young people talk with XXY Adults 

3.05 pm        

Workshop 4 with Dr. Stanworth – for parents and young people

Workshop 5 with Dorothy Bishop and Toni Shepherd

Workshop 6 Informal session 

4.00 pm Tea & Coffee

4.20 pm Round-up session & Raffle

5.00 pm  Conference ends.

The KSA NEC reserve the right to alter the programme if circumstances require


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