Working to raise awareness of Klinefelter's Syndrome

and to provide help and advice to all those affected

Benefits of Membership

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Join the KSA and receive these benefits:

  1. Welcome pack containing KSA printed publications, contact lists, and KSA promotional materials.
  2. Access to the Members Only Section of the www.ksa-uk.net website which provides free access to a wealth of information on KS and additional free downloads, such as, the 16 chapter Members Manual written by eminent authors and medical professionals on a range of KS topics.
  3. Subsidised bookings for the Activity Weekend held annually at Beeley, in Derbyshire. To find out more check out Activity Weekend 2012.
  4. The right to vote, have your say and influence KSA policy at the AGM.
  5. The opportunity to book a place at the KSA's Annual Conference where each year we provide topics on KS for adults and children.
  6. A quarterly Newsletter available as a free download from the Members Only section of the www.ksa-uk.net website or available in printed format if you prefer.
  7. The chance to meet others diagnosed with KS and or the parents of those diagnosed with KS.
  8. Access to local social support groups and or ad hoc meetings across the UK.
  9. Help and advice in identifying endocrinology consultants specialising in KS in specific towns or regions of the UK.
  10. Local rate Advice Line: 0845 230 0047 with four options to help direct you to the most appropriate contact.
  11. Involvement in research with direct interest to KS.
  12. Help with fundraising activities, such as, promotional t-shirts, stickers, posters, etc.
  13. And the larger the KSA gets the louder we'll be able to shout and be heard and improve the lot of those affected by KS!
  14. Join the KSA!

 

What could I be?

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KSA Activity Weekend 2013

 In 2013 we are running TWO Activity Weekends! One in April 5th-7th & one in September 13th-15th

When: 2 nights, 3 days 2013
Venue: Dukes Barn, Derbyshire.
Cost: £80 for those with KS or under 19, £135 for other Members, £310 for Non-Members.

Please book early as one weekend is half full already and I can run the second one only if there is enough advance interest!

There is more information about Activity Weekends under the Read more.... link below.

Contact me as soon as possible if you want further information or wish to book a place by phone on 01629 534402 or activityweekends@ksa-uk.net

Read more...

Who's Online

We have 3 guests online

2013 Annual Conference & AGM

When: 22nd June 2013.
Venue: Derby YMCA.
Cost: Early Bird £25 pp (before 30 April 2013), then £35 pp

Friday night pre-conference get-together: Travel Lodge, Pride Park Derby.  

Conference Agenda

9.00 am Registration opens.

9.50 am AGM

10.15 am Conference Starts

10.15 am Dr. Stanworth: Hormone replacement therapy and other issues

10.55 am Tea & Coffee

11.15 am   Prof. Dorothy Bishop: The effect extra sex chromosomes have on language development

11.55 am   Toni Shepherd: Autism

12.30 pm   Lunch

2.05 pm

Workshop 1: Adult KS men – Dr. Stanworth

Workshop 2: KS, Autism and communication Toni Shepherd and Dorothy Bishop

Workshop 3: Parents and young people talk with XXY Adults 

3.05 pm        

Workshop 4 with Dr. Stanworth – for parents and young people

Workshop 5 with Dorothy Bishop and Toni Shepherd

Workshop 6 Informal session 

4.00 pm Tea & Coffee

4.20 pm Round-up session & Raffle

5.00 pm  Conference ends.

The KSA NEC reserve the right to alter the programme if circumstances require


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