Working to raise awareness of Klinefelter's Syndrome

and to provide help and advice to all those affected

News Articles

Cho Oyu Tibet 8000m

Robert Ross is climbing Cho Oyu in aid of the KSA!

Cho Oyu  Autumn  2013
Robert once again is the fortunate beneficiary of his employer, Russell Investments’, sabbatical policy. He leaves on 7th September on an expedition to climb Cho Oyu, 8,201m in Tibet. Cho Oyu is about 20 miles west of Everest and is generally reckoned to be the easiest 8000m peak.

Event date:

07-September-2013 00:00                                     -                    
20-October-2013 00:00

Event type:

Overseas challenge e.g. Mountain climbing, Trek the Great Wall of China
If you'd like to sponsor Robert please visit:
https://mydonate.bt.com/fundraisers/robertross1
 

Bracknell Success!

Members’ Group for XXY/KS Adults

Held at Bracknell on 13th. July 2013 was a great success.

The KSA looks forward to building on this success with more meetings in the future. Watch this space!

If any other Members anywhere in the UK are interested in starting their own Members' Group please contact Alison Bridges on 01629 534402  or This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Group Meetings are  a great opportunity to meet other XXY/KS adults and parents and to have an enjoyable afternoon!

 

The XXY Brain Trust

The XXY Brain Trust

A newly created website (July 2013) the XXY Brain Trust - Supporting Intersex XXY Through Information and Outreach provides extensive information on understanding Intersex at prenatal, pubertal and adult stages. And provides information for medical professionals and those interested in conducting research.

A new study attempts to better understand how people perceive their gender identity. When asked “Are you a man or a woman?” most people will easily choose one of the two binary options. But what will be the answer if they don’t have to choose? Answering this question is the aim of this research. The XXY Brain Trust are promoting the research which is being undertaken by Prof. Daphna Joel, Dr. Effi Ziv, Dr. Maya Mukamel, Dr.Ricardo Tarrasch, Zohar Bermanwould. Please fill out the questionnaire in the following link and then distribute it to as many people as possible.

http://qacademics.qualtrics.com/SE/?SID=SV_0BWfDkB9kX2tpxW

 

Liam's Olympic Story

Special Olympics GB National Games

This is the first time that we have contributed to the newsletter but wanted to let other members know about our special son.

Liam who is 18 will be travelling to Bath in August for the Special Olympics GB National Games, where he will be representing Tayside in the 200m, 400m and long jump events. 

The games are the country’s largest sports event for athletes with intellectual disabilities, held every four years. 

The 9th National Summer Games will be held in the city of Bath from 28th August to 1st September 2013

The National Summer Games are organised by Special Olympics Great Britain, a charity that provides year-round sports training and competition for children and adults with intellectual disabilities in England, Scotland and Wales.

All of the family will be attended to cheer him and the rest of the athletes on. 

Liam was diagnosed XXY in 2001 and experienced delayed speech development and an ongoing learning disability. 

He attended his local high school where he was a popular member of the Support for learning base but struggled academically. However, sport is an area he excels in; he is an excellent swimmer and athlete and is a very active young man. He has represented the school and Tayside in many events over the years and has picked up a wide selection of medals.

He left school in May and will start a sports course at Angus College in September and has just started learning to drive. 

As you will see from the photograph, Liam is extremely tall and his physique is very similar to one of the first KS man we had the pleasure to meet when we attended our very first conference in Coventry. 

This young man was from Cumbria and came with his brother and was very honest about his experiences with KS, which we, as parents found very helpful. He struck us as being very positive.

 I am sure that Liam and all the special athletes will have a great time.

WebAdmin note: If you are a Member of the KSA and logged on there is an entire section devoted to stories written by those diagnosed with Klinefelter's Syndrome or XXY under the title of "What Could I Be?"



 

2014 Activity Weekends

Due to the enormous interest and participation in holding two Activity Weekends in 2013  the KSA are pleased to announce that they will be holding two again this year!

So days to mark are:

25th - 27th April and 19th - 21st September 2014

  If booked by 14th. March  2014 or  8th. August 2014,  the cost will be:

£80 for under -19s

£80 for all with KS

£135 for all other members

£350 for non-members

If booked after 14th. March  or 8th. August the costs will be:

£90 for under 19s £

£90 for all with KS and

£145 for all other members

£350 for non-members

For further details contact Alison Bridges by email on This e-mail address is being protected from spambots. You need JavaScript enabled to view it

 
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What could I be?

Full size imageWhat can I be?

KSA Activity Weekend 2014

In 2014 we are running TWO Activity Weekends - one 25th to 27th April and the other 19th to 21st September

IF BOOKED BEFORE 14th March for the Spring Event or BEFORE 8th August for the Autumn Event :

Cost: £80 for those with KS or under 19, £135 for other Members, £310 for Non-Members.

If booked after these dates the the costs rise to £90, £145 and £350 respectively

Please book early as the weekends fill up fast!!

 There is more information about Activity Weekends under the Read more.... link below.
 Contact me as soon as possible if you want further information or wish to book a place by phone on 01629 534402 or activityweekends@ksa-uk.net

Read more...

Who's Online

We have 2 guests online

2014 Annual Conference & AGM

When: 2014 28th June .
Venue: Brighton.
Cost: Early Bird £20.00 each

Friday night pre-conference get-together: The Regency Restaurant, 131 King's Road, Brighton, BN1 2HH

 

Hotel Accommodation information will be sent out to Members in the next few weeks and be included in the Spring Newsletter

 

  


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