Working to raise awareness of Klinefelter's Syndrome

and to provide help and advice to all those affected

Helpful Links for KSA Members

A selection of links that are all related to the KSA.

Display # 
# Web Link Hits
1   Link   Disussion Forum via xxytalk.com
XXYTalk.com was purchased by the Klinefelter's Syndrome Association (KSA) in June 2008. Povl Larsen (then Treasurer of the KSA) and Paul Dutton (then Chair of the KSA) had been moderators on XXYTalk.com for a number of years previously and, consequently, were familiar with its operating structure, its need to remain free from sponsorship and or advertisements which might compromise its independence and the rules and regulations by which it operated. Paul Dutton is now the co-administrator of XXYTalk.com in conjunction with Andre Lorek. Povl Larsen remains a moderator.

XXYTalk.com attracts members from across the world but mainly from English speaking countries and with most members in the UK, US, Canada, Australia and Europe. Although predominately used by those with Klinefelter's Syndrome the site also has forums for parents.

XXYTalk.com exists for anyone with any interest in KS, XXY, or variants and they can all be members and create topics in the discussion forum. XXYTalk.com has no sponsor and accepts no advertising. Although the KSA owns XXYTalk.com the KSA's management committee (the NEC) do not interfere with its day-to-day operations, having accepted the terms and conditions under which it operates, allowing XXYTalk.com to self-manage and regulate itself. The NEC do however review who is given administration powers and carry out ad hoc reviews now and then.

Membership for all is free but you must be 16 years old or over. XXYTalk.com is not in competition with any web presence operated by any Klinefelter Syndrome support organisation and in fact encourages support organisation on global basis to register their details on the site. XXYTalk.com welcomes the members and supporters of Klinefelter Syndrome Association UK.

In order to access the Forum and take part in any discussions, KSA members will need to Register as members with XXYTalk.com.

By becoming a member, you can read and reply to all the topics of discussion as well as create a profile and send private messages to other members.

Go to XXYTalk.com Discussion Forum(Note - you will get an "unauthorised Access" warning until you are registered).

XXYTalk.com has an online shop selling Klinefelter's Syndrome products - check it out at: http://www.cafepress.co.uk/xxytalk.
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2012 Annual Conference & AGM

When: Eaxct date still to be confirmed probably third Saturday in September 2012
Venue: The South of England.
Cost: tbc
Speakers: tbc

More information will be added as soon as we have agreed on a location, venue and date. 

KSA Activity Weekend 2012

 

For forms please contact Alison Bridges on 01629 534402 or by email: activityweekends@ksa-uk.net

When: 2 nights, 3 days 2012
Venue: Dukes Barn, Derbyshire.
Cost: £75 for those with KS or under 19, £130 for other Members, £300 for Non-Members.

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