Working to raise awareness of Klinefelter's Syndrome

and to provide help and advice to all those affected

Helpful Links for KSA Members

A selection of links that are all related to the KSA.

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# Web Link Hits
1   Link   Disussion Forum via was purchased by the Klinefelter's Syndrome Association (KSA) in June 2008. Povl Larsen (then Treasurer of the KSA) and Paul Dutton (then Chair of the KSA) had been moderators on for a number of years previously and, consequently, were familiar with its operating structure, its need to remain free from sponsorship and or advertisements which might compromise its independence and the rules and regulations by which it operated. Paul Dutton is now the co-administrator of in conjunction with Andre Lorek. Povl Larsen remains a moderator. attracts members from across the world but mainly from English speaking countries and with most members in the UK, US, Canada, Australia and Europe. Although predominately used by those with Klinefelter's Syndrome the site also has forums for parents. exists for anyone with any interest in KS, XXY, or variants and they can all be members and create topics in the discussion forum. has no sponsor and accepts no advertising. Although the KSA owns the KSA's management committee (the NEC) do not interfere with its day-to-day operations, having accepted the terms and conditions under which it operates, allowing to self-manage and regulate itself. The NEC do however review who is given administration powers and carry out ad hoc reviews now and then.

Membership for all is free but you must be 16 years old or over. is not in competition with any web presence operated by any Klinefelter Syndrome support organisation and in fact encourages support organisation on global basis to register their details on the site. welcomes the members and supporters of Klinefelter Syndrome Association UK.

In order to access the Forum and take part in any discussions, KSA members will need to Register as members with

By becoming a member, you can read and reply to all the topics of discussion as well as create a profile and send private messages to other members.

Go to Discussion Forum(Note - you will get an "unauthorised Access" warning until you are registered). has an online shop selling Klinefelter's Syndrome products - check it out at:

What could I be?

Full size imageNewsletter-Autumn-2012

KSA Activity Weekend 2014

You are too late for the  2015 SPRING Activity Weekend which was a huge success so book soon for the next one!

The Next Activity Weekend is the 18th to 20th September 2015.

Extra special rates for families who have never attended one of these hugely successful events!

Existing low rates for adults with KS.

To book or enquire about this fantastic opportunity to meet others with KS and have a great weekend at the same time please email:


Don't miss out - book early!!

Special 'Earlybird' price IF BOOKED BEFORE 8th August:

Cost: £80 for those with KS or under 19, £135 for other Members, £310 for Non-Members.

If booked later the costs rise to £90, £145 and £350 respectively.

Please book early as the weekends fill up fast!!

Contact me as soon as possible if you want further information or wish to book a place by phone on 01629 534402 or

There is more information about Activity Weekends under Read more... 

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2015 Annual Conference & AGM

When: 6th-7th June 2015
Venue: Derby
Cost:   £40 per day or £60 for both days! 


To celebrate our 25th anniversary, the KSA are delighted to announce that Conference 2015 will be bigger and better than ever before!

For the first time the Conference will run for 2 days!!  Following the success of the psychology workshops this year, Saturday will be a dedicated Psychology Day plus a short AGM. On Sunday will be Conference Day - giving everyone more time to talk, listen and learn.  Of course we will still hold the Friday Get-together and, in addition, we can have a super Saturday evening as well.

Conference dates: 5th June - Friday Night Get-together

                                6th June - Psychology day and AGM

                                7th June - Conference day. Speakers include renowned endocrinologist, Richard Quinton.

  For further information and booking form please contact





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