Helpful Links for KSA Members

Display #
#	Web Link	Hits
1	Obtaining a Statement of Special Education Need Obtaining a Statement of Special Education Need A tough job, but members have found the following of help: Rathbone Special Education Advice - this website is currently being updated, but their Special Education Advice Line should be able to help on a number of issues. In the past they have offered a range of documents as well as a "pack" to help obtain a statement. Rathbone Special Education Advice Or Telephone 0800 917 6790	573
2	Access to Disability Living Allowance Access to Disability Living Allowance Cerebra, who support children & young people with brain injuries, have produced an excellent guide to accessing the DLA. There is a short test, or you can download their weightier document (allow a minute or two for it to download). This is probably one of the best guides that we have seen for this sort of application & with just a little interpretation in a KS context should prove a tremendous help.	563
3	Help with Childcare Some parents in the KSA will require childcare within their own home. Childcare Approval Scheme As of April 2005 a government scheme was introduced which enabled parents to get some financial support to help pay for their employment costs, when employing an approved nanny. Employer Supported Childcare Voucher. Under the childcare approval scheme (April 2006) families may receive financial support by using employer-supported childcare vouchers, which will exempt parents from paying Tax & NIC on the first £55 per week or £243 per month of their childcare costs	326
4	Living with Disability This may not apply to most members, but this UK Government set of help-sheets may just have the answer you are looking for: Living with Disability factsheet	349
5	Valentin APAC Association for Carriers of Chromosomal Abnormalities. A French Association established to help, support, meet and facilitate contact between all families confronted by chromosomal abnormalities. The Association works to inform the public and medical professionals about frequent anomalies and insists on the importance of screening for families and prenatal diagnosis to be better informed. The Association aims to know and recognise the anomalies and their consequences, to improve daily life, to have better treatment, to encourage research and satisfy all the demands highlighted by families. Information and testimonials available in English.	288

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KSA Activity Weekend 2013

In 2013 we are running TWO Activity Weekends! One in April 5th-7th & one in September 13th-15th

When: 2 nights, 3 days 2013
Venue: Dukes Barn, Derbyshire.
Cost: £80 for those with KS or under 19, £135 for other Members, £310 for Non-Members.

Please book early as one weekend is half full already and I can run the second one only if there is enough advance interest!

There is more information about Activity Weekends under the Read more.... link below.

Contact me as soon as possible if you want further information or wish to book a place by phone on 01629 534402 or activityweekends@ksa-uk.net

2013 Annual Conference & AGM

When: 22nd June 2013.
Venue: Derby YMCA.
Cost: Early Bird £25 pp (before 30 April 2013), then £35 pp

Friday night pre-conference get-together: Travel Lodge, Pride Park Derby.

Conference Agenda

9.00 am Registration opens.

9.50 am AGM

10.15 am Conference Starts

10.15 am Dr. Stanworth: Hormone replacement therapy and other issues

10.55 am Tea & Coffee

11.15 am Prof. Dorothy Bishop: The effect extra sex chromosomes have on language development

11.55 am Toni Shepherd: Autism

12.30 pm Lunch

2.05 pm

Workshop 1: Adult KS men – Dr. Stanworth

Workshop 2: KS, Autism and communication– Toni Shepherd and Dorothy Bishop

Workshop 3: Parents and young people talk with XXY Adults

3.05 pm

Workshop 4 with Dr. Stanworth – for parents and young people

Workshop 5 with Dorothy Bishop and Toni Shepherd

Workshop 6 Informal session

4.00 pm Tea & Coffee

4.20 pm Round-up session & Raffle

5.00 pm Conference ends.

The KSA NEC reserve the right to alter the programme if circumstances require

XXYTalk.com

The KSA's FREE International talk forum for those diagnosed KS/XXY

Klinefelter's Syndrome Association

Working to raise awareness of Klinefelter's Syndrome

and to provide help and advice to all those affected

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