Helpful Links for KSA Members

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#	Web Link	Hits
1	Brain Gym Brain Gym is a series of quick, fun and effective exercises designed to enhance performance by assisting whole brain integration. Developed over 25 years ago by Paul Dennison, it was originally designed to help children and adults with reading difficulties; it is now a commonly used technique in education and commerce. Teachers who work with pupils with Special Educational Needs may well have come across the technique before, but recently a wider range of users has discovered its potential. Find out more by visiting the official Brain-Gym website or asking your school's SENCo. There are several books on the topic available via your local bookstore or online	372
2	PECS - Picture Exchange Communication System PECS - particularly suitable for younger children, PECS has been ably championed at the KSA by Sasha for a number of years, her workshop proving extremely popular with many parents. Where speech and language difficulties arise, PECS can, among its many benefits, bring effective communication forward and relieve the frustration felt by many affected children and parents. Further information is available on the PECS web-site and in a helpful book A Picture's Worth: PECS and Other Visual Communication Strategies in Autism (Topics in Autism) by Andrew Bondy & Lori Frost (also available from Amazon).	375
3	The Hanen Program One of our members in Wales introduced us to the Hanen System for children with language difficulties, pointing out that it made her realise how many more things she could do to help her son. The program runs in two forms (a) for teachers and (b) for parents. We printed (with permission) detailed information in our August 2002 Newsletter. Further information can be found in: Benjamin, J., (1999) Nursery World (Jan 21) Weitzman, E., Learning Language & Loving it, Publ. Hanen Centre Manolson, A., It takes two to talk, Publ. Hanen Centre Or contact: Winslow Publishers, Telford Road, Bicester, Oxfordshire, OX6 0TS Tel.: 01869 244644 or email sales@winslow-cat.com	431
4	Asperger's Syndrome & KS Many of the education needs of boys with KS are similar to those of boys with Asperger's Syndrome. Ironically, most parents struggle to get a statement for their KS boys, whose diagnosis is a simple blood-test, because education authorities quote the few boys who get through the system without help, yet ignore the thousands who fall by the wayside with needs they can see every day in boys with more "acceptable" syndromes. Remember, that just because your son has a KS diagnosis it doesn't mean he doesn't have something else too! In the KSA we have many, many parents whose sons have been refused a statement several times, then later on found out that he also has something that, if named earlier, would have got him the support almost as a matter of course. Asperger's Syndrome is just such a condition that lies beneath the raft of symptoms shown by KS boys - many of the education needs are similar, most of the boys, it seems are investigated for the condition prior to diagnosis. www.aspergerfoundation.org.uk Welcome to the website of the Asperger's Syndrome Foundation. We are a small registered charity based in central London, England. We do hope that you will find our site helpful and informative. We will update it regularly. The Asperger's Syndrome Foundation is committed to promoting awareness and understanding of Asperger's Syndrome. The Foundation aims to promote high quality support and services, and to enable people with Asperger's syndrome to develop into members of the community who are respected for their contribution and recognised for their unique differences.	385
5	Anti Natal Testing Antenatal tests After the initial excitement of discovering you are pregnant, the next thought for most parents is, 'Will our baby be all right?' There are now many antenatal tests that can be carried out during pregnancy which will offer reassurance if you are anxious. You don't have to have these tests, but it's important to know what's on offer before you decided whether or not to go ahead with testing.	468

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KSA Activity Weekend 2013

In 2013 we are running TWO Activity Weekends! One in April 5th-7th & one in September 13th-15th

When: 2 nights, 3 days 2013
Venue: Dukes Barn, Derbyshire.
Cost: £80 for those with KS or under 19, £135 for other Members, £310 for Non-Members.

Please book early as one weekend is half full already and I can run the second one only if there is enough advance interest!

There is more information about Activity Weekends under the Read more.... link below.

Contact me as soon as possible if you want further information or wish to book a place by phone on 01629 534402 or activityweekends@ksa-uk.net

2013 Annual Conference & AGM

When: 22nd June 2013.
Venue: Derby YMCA.
Cost: Early Bird £25 pp (before 30 April 2013), then £35 pp

Friday night pre-conference get-together: Travel Lodge, Pride Park Derby.

Conference Agenda

9.00 am Registration opens.

9.50 am AGM

10.15 am Conference Starts

10.15 am Dr. Stanworth: Hormone replacement therapy and other issues

10.55 am Tea & Coffee

11.15 am Prof. Dorothy Bishop: The effect extra sex chromosomes have on language development

11.55 am Toni Shepherd: Autism

12.30 pm Lunch

2.05 pm

Workshop 1: Adult KS men – Dr. Stanworth

Workshop 2: KS, Autism and communication– Toni Shepherd and Dorothy Bishop

Workshop 3: Parents and young people talk with XXY Adults

3.05 pm

Workshop 4 with Dr. Stanworth – for parents and young people

Workshop 5 with Dorothy Bishop and Toni Shepherd

Workshop 6 Informal session

4.00 pm Tea & Coffee

4.20 pm Round-up session & Raffle

5.00 pm Conference ends.

The KSA NEC reserve the right to alter the programme if circumstances require

XXYTalk.com

The KSA's FREE International talk forum for those diagnosed KS/XXY

Klinefelter's Syndrome Association

Working to raise awareness of Klinefelter's Syndrome

and to provide help and advice to all those affected

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