The Klinefelter’s Syndrome Association (KSA)
The aims of the KSA are:
- to offer support and information to all affected by KS
- to raise awareness of KS especially amongst the medical profession
- to promote research into the management of KS
The KSA offers support and information to all affected by, or having an interest in, Klinefelter’s Syndrome (KS). Through our website and helpline we have information available which can assist employers, teachers, social workers and the medical professions, amongst others, who come into contact with people diagnosed with KS.
Early diagnosis and a good understanding of the effects of KS can greatly alleviate future problems. Therefore the KSA seeks to raise the profile of the condition with the medical profession, other public and private bodies and the general public, so that all understand its implications, not only for the individual affected, but also for all those with whom they have contact during their lives.
The KSA holds an annual Conference and AGM in June and an Activity Weekend is run each spring and autumn. Members’ social meetings are held at various locations throughout the year. A Members’ newsletter is published at least 3 times each year. The KSA hosts a chat forum XXYTalk.com and several Facebook pages. There is a HelpLine – 0300 111 4748.
The charity is run entirely by voluntary workers who make up a National Executive Committee (NEC) and is funded mainly through membership fees and donations.