I was diagnosed in 2012 in my early 40s.

Being a member of the KSA has helped me through the conferences and  conversations with others. These have helped me to find out more about my condition and to realise I have the power to challenge my Doctors to get the right treatment for me.

Its helped me understand that I can call upon fellow members and trustees for support if required while using utilising my skills to help the KSA move forward. 

I was born and brought up in Rhodesia but now live in London with my lovely partner.