Most adults will never receive genetic counselling or any psychological support following a diagnosis of KS/XXY.
Many adults suffer from sleep apnoae
because of poor muscle tone.
Few are ever given any support with weight management which is often a problem for KS/XXY people.
Many are never offered DEXA scans
to check bone density.
It is extremely rare for them to be offered screening for breast cancer
despite their risk being substantially higher than other males.
There is, however, a greater awareness of increased risk of diabetes
and of potential fertility options