The future

The effects of KS/XXY are very variable. Many of our members have very successful careers as lawyers, medical professionals, teachers etc. However, others may need some support.

Much of the early literature about KS/XXY mentions the high proportion of KS/XXY males in the prison population and low IQ. These old medical books often paint a rather bleak picture. However it is now accepted that, although many with the condition do have some learning difficulties, with appropriate support these often can be overcome.  Many of those who have KS/XXY may not even realise they have the condition as 75% are undiagnosed.

The KSA has created a poster ‘What could I be?’  to help raise awareness of the skills and achievements of a cross-section of our members.

Some of our members have written about their lives. We hope their stories will change the perception of the abilities of those with KS or XXY. 

Read their stories here.

Testosterone replacement should protect bone health and induce secondary sex characteristics such as body and facial hair. It can increase feelings of well-being, help to build muscle and improve cognitive abilities.

Although very few men will be able to father children without assistance, there are techniques already available by which sperm could be extracted from the testes. Although success rates are poor at present, they are likely to improve.

There is a greater awareness that KS/XXY is about more than infertility and testosterone. Your child is already one of the luckier ones who already has a diagnosis. 

KS/XXY youngsters are often late to mature – but they continue to mature for longer.