Information about Coronavirus, KS and the KSA

The Klinefelter Multi-Specialty Clinic at St Thomas Hospital, London is trying to estimate the risks and burdens of patients with Klinefelter Syndrome (KS) during the CoVid 19 pandemic, especially in relation to thrombo-embolic events like deep vein thrombosis (DVT) – blood clot in leg, pulmonary embolism (PE) – blood clot in lung & strokes. These questions can help us as doctors to tailor advice and guide recommendations for the national-access clinic and for other KS bodies such as the Klinefelter Association (KSA).

Thank you for your time and effort in helping us. The survey should take about 5 mins to complete.  https://www.surveymonkey.co.uk/r/QKS3DLJhttps://www.surveymonkey.co.uk/r/QKS3DLJ

PLEASE NOTE THAT THERE IS CURRENTLY NO EVIDENCE THAT  KS PATIENTS ARE AT HIGHER RISK OF COVID 19 THAN THE GENERAL POPULATION.

 

KSA social events and Clovid-19.

The Activity Weekend has been rescheduled for the 11th to 13th September 2020. It remains to be seen if this will be viable. The KSA Conference will be rescheduled for next year. A decision about the Scottish Event on the 5th September will be made nearer the time.

KS/XXY is not a disability and those who have the condition are not necessarily particularly vulnerable to the Coronavirus Disease (COVID-19). However some may have conditions such as diabetes or coronary and bronchial conditions which would make them more vulnerable.
We urge all our members to follow all Government advice.
https://www.gov.uk/coronavirus
https://www.nhs.uk/conditions/coronavirus-covid-19/
Be sensible
Keep your distance
We hope that you and your loved ones stay healthy during this difficult time.
With very best wishes to you all,
The Trustees of the KSA

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