General Information

Draft programme for KSA Virtual Conference 2021

Please note that this is a draft programme. Timings may change!

KS and Fertility

This booklet was produced by the KSA in conjunction with Mr Kevin McEleny, consultant urologist and head of department at Newcastle Fertility Centre. It provides information about current fertility options for KS/XXY adults.
This layput is suitable for printing as a double sided booklet.
An alternative layout, more suitable for on-line reading, is also available.

Klinefelter's Syndrome and Fertility - read version

This booklet was produced by the KSA in conjunction with Mr Kevin McEleny, consultant urologist and head of department at Newcastle Fertility Centre. It provides information about current fertility options for KS/XXY adults.
There is another layput available which is suitable for printing as a double sided booklet.

Klinefelter's Syndrome (KSA leaflet)

This contains general information about Klinefelter's Syndrome/XXY.

The 2 pages of the 6 page should be printed back to back in landscape view.

The two pages of the 4 page should be printed back to back in landscape view.

Fold into thirds. Staple on first fold.

Cut off blank section.

Osteoporosis and KS/XXY

The document provides an overview of Osteoporosis and its importance in relation to KS/XXY. Please see your doctor/dietician for further details. To obtain a copy of the booklet: Compston J (2006) Understanding Osteoporosis BMA Family Doctor Series (http://www.worldcat.org/title/understanding-osteoporosis/oclc/852121432)

Testosterone Treatment Diary

Learning Needs of Children with KS - Information for Teachers & Parents

Recent years have seen the tide turning in the ways that youngsters with Klinefelter’s Syndrome (KS)/XXY have managed at school. This is reflected in the statistics of the Klinefelter’s Syndrome Association survey which pointed out that, whilst virtually no adults had attended special schools as children, the figure had risen to around 1 in 3 by 1999. There is still a long way to go; many parents still feel the frustration of battling against cash- strapped education authorities for help, and many teachers long for insight into the minds of youngsters with complex needs.

ESA

This document provides information and guidance on applying for Employment and Support Allowance

The Psychological and Social Impact of Klinefelter's Syndrome: Report for the KSA

Executive Summary, by Marianne Morris, Sue Jackson & Jude Hancock, University of the West of England 2009
(Full report available to Members of the KSA)

"It's your hormones". A qualitative exploration of men's experiences of Klinefelter's syndrome

Klinefelter’s Syndrome (KS) is a genetic condition affecting men. It has the potential to:

• severely reduce testosterone levels
• affect physical appearance and sexual development and function
• affect learning and educational development