General Information

KS and Fertility

(469.05 KB file size)

This booklet was produced by the KSA in conjunction with Mr Kevin McEleny, consultant urologist and head of department at Newcastle Fertility Centre. It provides information about current fertility options for KS/XXY adults.
This layput is suitable for printing as a double sided booklet.
An alternative layout, more suitable for on-line reading, is also available.

Klinefelter's Syndrome and Fertility - read version

(470.87 KB file size)

This booklet was produced by the KSA in conjunction with Mr Kevin McEleny, consultant urologist and head of department at Newcastle Fertility Centre. It provides information about current fertility options for KS/XXY adults.
There is another layput available which is suitable for printing as a double sided booklet.

Klinefelter's Syndrome (KSA leaflet)

(10.10 MB file size)

This contains general information about Klinefelter's Syndrome/XXY.

The 2 pages of the 6 page should be printed back to back in landscape view.

The two pages of the 4 page should be printed back to back in landscape view.

Fold into thirds. Staple on first fold.

Cut off blank section.

 

Osteoporosis and KS

(1.19MB file size)

The document provides an overview of Osteoporosis and its importance with KS. Please see your doctor/dietician for further details. I recommend you obtain a copy of the booklet: Compston J (2006) Understanding Osteoporosis BMA Family Doctor Series (http://www.worldcat.org/title/understanding-osteoporosis/oclc/852121432) By Paul Collingridge

Testosterone Treatment Diary

(95.79 KB file size)

Learning Needs of Children with KS - Information for Teachers & Parents

(115.25 KB file size)

Recent years have seen the tide turning in the ways that boys with Klinefelter’s Syndrome (KS) have settled down at school, this is reflected in the statistics of the Klinefelter’s Syndrome Association survey which pointed out that whilst virtually no adults had attended special schools as children, the figure had risen to around 1 in 3 by 1999. There is still a long way to go; many parents still feel the frustration of battling out for help against cash- strapped education authorities, and many teachers long for insight into the minds of boys with complex needs.

ESA

(203 KB file size)

This document provides information and guidance on applying for Employment and Support Allowance

The Psychological and Social Impact of Klinefelter's Syndrome: Report for the KSA

(130.50 KB file size)

Executive Summary, by Marianne Morris, Sue Jackson & Jude Hancock, University of the West of England 2009
(Full report available to Members of the KSA)

"It's your hormones". A qualitative exploration of men's experiences of Klinefelter's syndrome

(126.50 KB file size)

Klinefelter’s Syndrome (KS) is a genetic condition affecting men. It has the potential to:

  • severely reduce testosterone levels
  • affect physical appearance and sexual development and function
  • affect learning and educational development

Attribution Matters: The Impact of Klinefelter's Syndrome on Psycho-social Functioning

(138.00 KB file size)

Much of the research on KS has been directed at understanding the cognitive impact even though biomedical researchers and condition specialists continually acknowledge the psychological impact this condition has and the need to address these issues.