The Klinefelter’s Syndrome Association (KSA)
The Klinefelter’s Syndrome Association (KSA) offers support and information to all affected by, or having an interest in, Klinefelter’s Syndrome (KS) and XXY.
The aims of the KSA are:
- to offer support and information to all affected by KS and XXY
- to raise awareness of KS and XXY especially amongst the medical profession
- to promote research into the management of KS and XXY
Through this website and helpline information is available which can assist employers, teachers, social workers and the medical professions, amongst others, who come into contact with people diagnosed with KS and XXY.
Early diagnosis and a good understanding of the effects of KS and XXY can greatly alleviate future problems. Therefore the KSA seeks to raise the profile of the condition with the medical profession, other public and private bodies and the general public, so that all understand its implications, not only for the individual affected, but also for all those with whom they have contact during their lives.
The KSA holds an annual Conference in June and an Activity Weekend is run each spring and autumn. Members’ social meetings are held at various locations throughout the year. A Members’ Newsletter is published at least 3 times each year. The KSA hosts a chat forum XXYTalk.com and several Facebook pages. There is a HelpLine – 0300 111 4748.
The charity is run entirely by voluntary workers who make up a National Executive Committee (NEC) and is funded through membership fees and donations.