Late diagnosis template
Most KS/XXY adults are never diagnosed or are diagnosed late in life.
Unfortunately KS/XXY is often diagnosed late in life (at over 35 years of age) when much of the damage in terms of physical, mental and social health has been done.
As a result, many may have had little support or understanding and may suffer from
- osteoporosis
- obesity
- diabetes
- extreme tiredness or lethargy
- depression
- gynaecomastia (breast development)
- mood swings and mental health issues.
However, not ALL suffer from ALL these symptoms.
Nor do ALL suffer extremes.
Symptoms occur often………..but not always.
Many adults who were diagnosed later in life said that KS/XXY had little effect on them – other than infertility.
Each case of KS/XXY needs to be individually assessed.
Some of our members are affected by osteoporosis in their thirties while others are active sportsmen.
Some have essential tremor while others do not.
Some have diabetes, while others do not.
Early diagnosis, a healthy lifestyle and appropriate treatment can make a huge difference!
Currently about 75% are never diagnosed and many are diagnosed later in life.
The poem below was written by one of our members who was diagnosed at the age of 70. The diagnosis explained so much about his life. He speaks for so many of those diagnosed late in life.