Klinefelter's Syndrome Association (KSA)

Helpline 0300 111 4748

The KSA

The Klinefelter’s Syndrome Association (KSA) was formed on 21^st December 1990 by parents, Sue and David Cook, and a KS/XXY adult, Steve Hammett.

It was incorporated as a charity in 1996. Sue and David remained as very active trustees until 2018. All are still members.

The KSA is run by trustees who make up a National Executive Committee (NEC). They are helped by non-trustee volunteers. It has no paid workers.

The KSA is funded mainly through membership fees and donations.

The aims of the KSA are:

to offer support and information to all affected by KS/XXY
to raise awareness of KS and XXY especially amongst the medical profession
to promote research into the management of KS/XXY

The KSA vision is of universal recognition, support and understanding of KS/XXY.

Through our website and helpline, we provide information and support for all affected by KS/XXY including families, medical professionals, teachers and anyone else who comes into contact with people diagnosed with KS/XXY.

National Helpline: 0300 111 47 48

Our very grateful thanks to Childline for allowing us to link extensively to their website.