The Klinefelter’s Syndrome Association (KSA) was formed on 21st December 1990 by parents, Sue and David Cook, and a KS/XXY adult, Steve Hammett.
It was incorporated as a charity in 1996. Sue and David remained as very active trustees until 2018. All are still members.
The KSA is run by trustees who make up a National Executive Committee (NEC). They are helped by non-trustee volunteers. It has no paid workers.
The KSA is funded mainly through membership fees and donations.
The aims of the KSA are:
- to offer support and information to all affected by KS/XXY
- to raise awareness of KS and XXY especially amongst the medical profession
- to promote research into the management of KS/XXY
The KSA vision is of universal recognition, support and understanding of KS/XXY.