Meet the people behind the KSA
The KSA is the only UK based charity for all affected by KS/XXY.
It is run by a small group of trustees and volunteers all of whom give their time freely.
Volunteers who are the trustees who make up the National Executive Committee (NEC)
Paul Dutton
Chair of trustees
Paul was diagnosed as 47 XXY in 1996
More about Paul
Lexi Breen
Vice Chair of trustees and Social Media Officer
Lexi was diagnosed in 2015
More about Lexi
Melanie Perrins
Membership secretary
Sarah Gordon
Honorary Treasurer
A member of Sarah's family was diagnosed with KS/XXY.
More about Sarah
Ken Scott
Helpline and support officer
Ken was diagnosed in 1997
More about Ken
Sylvia James-Yates
Honorary Secretary
A member of Sylvia's wider family was diagnosed with KS/XXY
More about Sylvia
Claire Harkin
Research Coordinator
A member of Claire's close family was diagnosed with KS/XXY.
More about Claire
Alison Bridges
Activity Weekend and Helpline
Alison's son was diagnosed in 1985 when he was 4 and still not talking
More about Alison
Philippa Reed
Trustee
More about Philippa
Non trustee volunteers
Nicola Lal
Web Administrator
Nicola's son was diagnosed aged 12 (2020) after he grew very tall very quickly!
More about Nicola