Welcome to the Klinefelter's Syndrome Association (KSA)
Activity Weekends booking now!
19 to 21 August 2022
14 to 16 April 2023
We offer information, understanding and support for everyone.
Families to be
information and support
Professionals
symptoms diagnosis treatment.
Families to be
information and support
Professionals
symptoms diagnosis treatment.
Klinefelter's Syndrome isn't rare
...but it is rarely diagnosed.
KS/XXY Awareness Day Presentation
10th May 2022
The Klinefelter’s Syndrome Association (KSA)
is proud to present it’s first Klinefelter’s Syndrome Awareness Day on
10th May 2022
featuring this video of KSA trustee Jim Howard (and some puppets) telling the stories of real KS/XXY people to illustrate the importance of early diagnosis.
KSA trustee AJ Howard (and a few puppets) present this Klinefelter’s Syndrome KS/XXY Awareness Day Presentation journey from baby to adulthood.
It highlights preventable harm, poor aftercare and shows that an early diagnosis improves quality of life.
That the future offers hope to everyone that is given the opportunity to receive an early diagnosis, lifelong treatments, educational support and fulfil their potential.
News
Please join me at Alderley Edge in Cheshire. We will have lunch at a nice quiet pub which has some good food and beers. There is plenty of space outside...
The KSA is delighted to announce that it will be holding its annual conference in Huddersfield on the 18th and 19th of June. There will be a very full programme...
Welcome to the first Klinefelter’s Syndrome Awareness Day – brought to you by the Klinefelter’s Syndrome Association (KSA). It is 80 years since Harry Klinefelter identified the syndrome which we...
We’d like to invite you to watch the new video for the Klinefelter Syndrome Clinic in London. Please watch and share.
Understanding Klinefelter Syndrome, published by Glass Magazine. An all-too-common XXY story - with a happy ending!
Raj Baksi on Guy’s Hospital First Klinefelter’s Syndrome (KS/XXY) Adolescent Clinic
An excellent in-depth article about male infertility from Undark magazine. It discusses the often ignored emotional effect this has on the men affected.
An interesting, thoughtful and realistic story of a KSA member’s experience of KS/XXY in general and infertility in particular.
AmazonSmile is a simple way for you to support the Klinefelter’s Syndrome Association (KSA) every time you shop, at no cost to you. When you shop at smile.amazon.com, you’ll find...
Responding to the Coronavirus Crisis by Stephen Kemp KSA Trustee. "Between 1994 and 2001, I worked in humanitarian assistance overseas ..."
Research
If applicable, please take part in this survey that supports research into men’s experience of pregnancy after fertility treatment.
Activity Weekends
At last the long postponed Activity Weekend was able to go ahead at the Dukes Barn. It wasn’t quite as...
Great to be back! Despite the ravages of covid, 29 of us met up at the Dukes Barn at Beeley...
Feedback on Events
KSA on Social Media
The Klinefelter Multi-Speciality Clinic at St Thomas Hospital London is looking at the risks/ burdens of patients with KS during COVID-19 (relating to thrombo-emboli events eg Deep Vein Thrombosis. To help please fill in this survey #KlinefeltersSyndrome
Read MoreOur very own Claire and Ken are at the Royal College of GPs (RCGP) conference in Liverpool today and tomorrow to raise awareness of #KlinefeltersSyndrome with GPs. If you are there come and say hello to them! #RCGPAC @RCGPAC https://t.co/b7lNoJxtNW
Read More
Never stop doing little things for others. Sometimes those little things occupy the biggest part of their hearts #KlinefeltersSyndrome #InspirationalQuotes https://t.co/LgQSEqTPbE
Read More
We are delighted to invite you to the first KSA Virtual Conference between 5-6 June 2021. To look at the programme of events and book your FREE tickets via #KlinefeltersSyndrome https://t.co/fGiJAqbmxg
Read More
Your hardest times often lead to the greatest moments in your life. Keep going. Tough situations build strong people in the end #KlinefeltersSyndrome #InspirationalQuotes https://t.co/dU81OPXqBu
Read More
@raj_baksi shares his story on life and #KlinefeltersSyndrome with @rarediseaseuk
Read MoreSupport #KlinefeltersSyndrome Association (KSA) when you shop online with #easyfundraising and 4,400+ retailers. It makes a BIG difference during this difficult time. Plus, we'll receive a £5 bonus donation when you sign up: https://t.co/kTfkg5KnCK
Read MoreEnter the #easyfundraising Valentine's Day Giveaway to help #KlinefeltersSyndrome Association (KSA) WIN a £500 donation! Simply visit the competition page and click any of the listed retailers before midnight on 14th February! Enter now:
Read MoreWe’d like to invite you to watch this new video for the Klinefelter Syndrome Clinic in London. Please watch and share it, to raise awareness about Klinefelters Syndrome #KlinefeltersSyndrome
Read MoreIf you need to talk to someone, we are still open for business and here to provide information & support for all those affected by KS and XXY #KlinefeltersSyndrome https://t.co/sUJy8CEFnh
Read More
The Klinefelter Multi-Speciality Clinic at St Thomas Hospital London is looking at the risks/ burdens of patients with KS during COVID-19 (relating to thrombo-emboli events eg Deep Vein Thrombosis. To help please fill in this survey #KlinefeltersSyndrome
Read MoreOur very own Claire and Ken are at the Royal College of GPs (RCGP) conference in Liverpool today and tomorrow to raise awareness of #KlinefeltersSyndrome with GPs. If you are there come and say hello to them! #RCGPAC @RCGPAC https://t.co/b7lNoJxtNW
Read More
Never stop doing little things for others. Sometimes those little things occupy the biggest part of their hearts #KlinefeltersSyndrome #InspirationalQuotes https://t.co/LgQSEqTPbE
Read More
We are delighted to invite you to the first KSA Virtual Conference between 5-6 June 2021. To look at the programme of events and book your FREE tickets via #KlinefeltersSyndrome https://t.co/fGiJAqbmxg
Read More
Your hardest times often lead to the greatest moments in your life. Keep going. Tough situations build strong people in the end #KlinefeltersSyndrome #InspirationalQuotes https://t.co/dU81OPXqBu
Read More
@raj_baksi shares his story on life and #KlinefeltersSyndrome with @rarediseaseuk
Read MoreSupport #KlinefeltersSyndrome Association (KSA) when you shop online with #easyfundraising and 4,400+ retailers. It makes a BIG difference during this difficult time. Plus, we'll receive a £5 bonus donation when you sign up: https://t.co/kTfkg5KnCK
Read MoreEnter the #easyfundraising Valentine's Day Giveaway to help #KlinefeltersSyndrome Association (KSA) WIN a £500 donation! Simply visit the competition page and click any of the listed retailers before midnight on 14th February! Enter now:
Read MoreWe’d like to invite you to watch this new video for the Klinefelter Syndrome Clinic in London. Please watch and share it, to raise awareness about Klinefelters Syndrome #KlinefeltersSyndrome
Read MoreIf you need to talk to someone, we are still open for business and here to provide information & support for all those affected by KS and XXY #KlinefeltersSyndrome https://t.co/sUJy8CEFnh
Read More