Welcome to the Klinefelter's Syndrome Association (KSA)
We offer information, understanding and support for everyone.
Families to be
information and support
Professionals
symptoms diagnosis treatment.
Families to be
information and support
Professionals
symptoms diagnosis treatment.
Klinefelter's Syndrome isn't rare
...but it is rarely diagnosed.
KSA Video Library
Intersex Awareness Day 2022 from an XXY/Klinefelter’s Perspective
About 1.7% of babies are born with sex characteristics which do not fit the typical definitions of male and female. There is a wide range of variations which can cause a person to be Intersex, including XXY. We hope our video offers some insight into the importance of accepting each person as an individual.
By AJ Howard and Ken Scott on behalf of the Klinefelter’s Syndrome Association
In collaboration with The XXY Project, Australia
Dukes Barn is in the village of Beeley, Derbyshire, within proximity of Chatsworth House. Activities in this presentation include Bouldering & Weaselling. Climbing & Abseiling. Archery. Indoor Climbing Wall. Assault Course. Other activities including Canoeing. Caving. Stream Walking that are not shown, will feature in the April 2023 Dukes Barn weekend video (to follow).
Photography & Presentation by KSA trustee AJ Howard
Latest News
The Klinefelter’s Syndrome Association are delighted to announce that the 2024 Activity Weekend in April was the biggest ever. It was great to see...
This research opportunity for families, is being conducted by Ellie Crisp and the University of Exeter School of Education. “I am still looking...
Researchers at Cambridge University have designed a website where people with KS can find out what kind of brain (i.e. mind) they have.
On Thursday 11th of January, KSA Trustee Claire Harkin attended the 2024 Fertility Conference in Edinburgh as a day delegate and gave a Rapid-Fire...
There still seems to be difficulty obtaining some of the testosterone gels. We have been notified by Androlabs that the supply of Testavan gel...
There is currently some disruption to supplies of Tostran gel. If your pharmacy is having difficulty obtaining it, please tell them to phone the...
You may be interested in the following article and case study that looks at Non-mosaic Klinefelter Syndrome Successful Conception after TESE/ICSI: A case report from...
Klinefelter syndrome (KS) patients younger than 16 should not be offered fertility preservation, according to a new evidence review. NEW YORK (Reuters Health) –...
Research Articles
This research opportunity for families, is being conducted by Ellie Crisp and the University of Exeter School of Education. ...
Researchers at the University of Huddersfield are studying people with KS/XXY syndrome and their experiences of every-day skills like memory,...
We have been sent a survey which is essentially for professionals who provide care for those affected by KS/XXY. We...
If applicable, please take part in this survey that supports research into men’s experience of pregnancy after fertility treatment.
Social Events
The Klinefelter’s Syndrome Association are delighted to announce that the 2024 Activity Weekend in April was the biggest ever. It...
Adult KS/XXY social 27th October 24 Meeting at Didsbury, Manchester. Sunday 27th October For further details and to confirm your interest,...
The Klinefelter’s Syndrome Association are delighted to announce that the 2024 Activity Weekend in April was the biggest ever. It...
KSA Conference and AGM 2024 with an outstanding programme of speakers and plenty of time for chat!
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