Welcome to the Klinefelter's Syndrome Association (KSA)
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We offer information, understanding and support for everyone.
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information and support
Professionals
symptoms diagnosis treatment.
Families to be
information and support
Professionals
symptoms diagnosis treatment.
Klinefelter's Syndrome isn't rare
...but it is rarely diagnosed.
KSA Video Library
Intersex Awareness Day 2022 from an XXY/Klinefelter’s Perspective
About 1.7% of babies are born with sex characteristics which do not fit the typical definitions of male and female. There is a wide range of variations which can cause a person to be Intersex, including XXY. We hope our video offers some insight into the importance of accepting each person as an individual.
By AJ Howard and Ken Scott on behalf of the Klinefelter’s Syndrome Association
In collaboration with The XXY Project, Australia
Dukes Barn is in the village of Beeley, Derbyshire, within proximity of Chatsworth House. Activities in this presentation include Bouldering & Weaselling. Climbing & Abseiling. Archery. Indoor Climbing Wall. Assault Course. Other activities including Canoeing. Caving. Stream Walking that are not shown, will feature in the April 2023 Dukes Barn weekend video (to follow).
Photography & Presentation by KSA trustee AJ Howard
News
There is currently some disruption to supplies of Tostran gel. If your pharmacy is having difficulty obtaining it, please tell them to phone the suppliers, Kyowa Kirin Ltd on: 01896...
The KSA is delighted to announce that the 2023 KSA Annual Conference will be held at the Aston Court Hotel in Derby on 13th and 14th of May with the...
An excellent in-depth article about male infertility from Undark magazine. It discusses the often ignored emotional effect this has on the men affected.
Responding to the Coronavirus Crisis by Stephen Kemp KSA Trustee. "Between 1994 and 2001, I worked in humanitarian assistance overseas ..."
Raj Baksi discusses KS/XXY and the new multi-disciplinary clinic at Guy's Hospital in London.
You may be interested in the following article and case study that looks at Non-mosaic Klinefelter Syndrome Successful Conception after TESE/ICSI: A case report from Egypt. You can view it here.
Big congratulations and huge thanks from all at the KSA charity to one of our members Paul who has successfully raised over £1000 sponsorship (and exceeded his target) in his...
Please see an article published today in the UK newspaper The Telegraph. The part about Klinefelter’s Syndrome starts on page 4 and contains quotes from our Vice Chair at the...
In episode 108 our Vice Chair, Raj Baksi spoke to the Fertility Show Podcast to discuss Klinefelter’s Syndrome – find out what he had to say. Listen now
Research
We have been sent a survey which is essentially for professionals who provide care for those affected by KS/XXY. We...
If applicable, please take part in this survey that supports research into men’s experience of pregnancy after fertility treatment.
Below is a really important research questionnaire which we are asking all KS/XXY folk to please complete. It doesn’t take...
Social events
The KSA hosts regular ‘virtual chats’ to allow members to chat, ask questions, suggest, discuss, have a moan – or...
Ryan Bregante is an American XXY adult who has a very positive attitude to KS/XXY. Many of you may have...
James, a KSA member, has organised another of his enjoyable social events for anyone affected by KS/XXY
The KSA is delighted to announce that the 2023 KSA Annual Conference will be held at the Aston Court Hotel...
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Klinefelter's Syndrome Association
New Research: Cardiorespiratory fitness in adolescents and young adults with Klinefelter syndrome – a pilot
Cardiorespiratory fitness in adolescents and young adults with Klinefelter syndrome – a pilot study
BackgroundKlinefelter syndrome (KS) may be associated with a wide spectrum of phenotypic changes including endocrine, metabolic, cognitive, psychiatric and cardiorespiratory pathologies in adults. However, in adolescence the clinical phenotype of KS is not well described, especially regarding physic...
Klinefelter's Syndrome Association
A productive meeting Monday and Tuesday of the Endocrine European Reference Network (ERN) in Amsterdam.
Our very own Claire and Ken are at the Royal College of GPs (RCGP) conference in Liverpool today and tomorrow to raise awareness of #KlinefeltersSyndrome with GPs. If you are there come and say hello to them! #RCGPAC @RCGPAC https://t.co/b7lNoJxtNW
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Never stop doing little things for others. Sometimes those little things occupy the biggest part of their hearts #KlinefeltersSyndrome #InspirationalQuotes https://t.co/LgQSEqTPbE
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We are delighted to invite you to the first KSA Virtual Conference between 5-6 June 2021. To look at the programme of events and book your FREE tickets via #KlinefeltersSyndrome https://t.co/fGiJAqbmxg
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Your hardest times often lead to the greatest moments in your life. Keep going. Tough situations build strong people in the end #KlinefeltersSyndrome #InspirationalQuotes https://t.co/dU81OPXqBu
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If you need to talk to someone, we are still open for business and here to provide information & support for all those affected by KS and XXY #KlinefeltersSyndrome https://t.co/sUJy8CEFnh
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