Welcome to the Klinefelter's Syndrome Association (KSA)

We offer information, understanding and support for everyone.

"Klinefelter's Syndrome isn't rare — but it is rarely diagnosed."

Around 1 in 660 males are born with KS/XXY

KSA Video Library

3 Videos

Latest News

Newsletter Image

The Psychologist

Raising Psychologists’ Awareness of KS/XXY. Dr. Jenny Retzler, whom many of you may have met at KSA conferences, has had an article  accepted by...Read More

Forensic research

Vital research on KS/XXY in the justice system. Please help!   The KSA are working with two forensic psychologists to look at why some KS/XXY people...Read More

Activity Weekend 2026 – Derbyshire

The Klinefelter’s Syndrome Association are delighted to announce that following the success of the 2024 Activity Weekends we are now taking bookings for 2025.

DNA Background

Tostran gel

There is currently some disruption to supplies of Tostran gel. If your pharmacy is having difficulty obtaining it, please tell them to phone the...Read More

Research Articles

Newsletter Image

The Psychologist

Raising Psychologists’ Awareness of KS/XXY. Dr. Jenny Retzler, whom many of you may have met at KSA conferences, has had...Read More

Forensic research

Vital research on KS/XXY in the justice system. Please help!   The KSA are working with two forensic psychologists to look at...Read More

Research for KS/XXY children

This research opportunity for families, is being conducted by Ellie Crisp and the University of Exeter School of Education.   ...Read More

Social Events

Image of The Village Hotel, Coventry

KSA Conference 2025

Can You Afford to Miss the KSA Conference 2025? Where can you benefit from 4 whole hours of informal chat...Read More

Activity Weekend 2025

The Klinefelter’s Syndrome Association are delighted to announce that following the success of the 2024 Activity Weekends we are now...Read More

Feedback on Events

‘We love every second’
‘Wouldn’t miss it for the world’
‘One’s shyness disappears’
‘Never bored, but always relaxing’
‘it’s like being part of a wider family’
'Was nervous at first but soon realised that everyone was like me'
'The river walk was seriously mash potatoes!' (aged 8)
'It has helped me take my mind off stuff at home'
'After coming on this activity weekend we have a much wider knowledge'
'Would love to live in the UK after a weekend like this, really enjoyable 😊' (Visitor from USA who came especially for the AW).

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