Welcome to the Klinefelter's Syndrome Association (KSA)
The Friends you Make
We offer information, understanding and support for everyone.
Families to be
information and support
Professionals
symptoms diagnosis treatment.
Families to be
information and support
Professionals
symptoms diagnosis treatment.
Klinefelter's Syndrome isn't rare
...but it is rarely diagnosed.
KSA Video Library
Intersex Awareness Day 2022 from an XXY/Klinefelter’s Perspective
About 1.7% of babies are born with sex characteristics which do not fit the typical definitions of male and female. There is a wide range of variations which can cause a person to be Intersex, including XXY. We hope our video offers some insight into the importance of accepting each person as an individual.
By AJ Howard and Ken Scott on behalf of the Klinefelter’s Syndrome Association
In collaboration with The XXY Project, Australia
Dukes Barn is in the village of Beeley, Derbyshire, within proximity of Chatsworth House. Activities in this presentation include Bouldering & Weaselling. Climbing & Abseiling. Archery. Indoor Climbing Wall. Assault Course. Other activities including Canoeing. Caving. Stream Walking that are not shown, will feature in the April 2023 Dukes Barn weekend video (to follow).
Photography & Presentation by KSA trustee AJ Howard
News
Ryan Bregante is an American XXY adult who has a very positive attitude to KS/XXY. Many of you may have seen his website: A Community For Klinefelter Syndrome – Living...
James, a KSA member, has organised another of his enjoyable social events for anyone affected by KS/XXY
The KSA is delighted to announce that the 2023 KSA Annual Conference will be held in Derby. Watch this space for the date!
Welcome to the first Klinefelter’s Syndrome Awareness Day – brought to you by the Klinefelter’s Syndrome Association (KSA). It is 80 years since Harry Klinefelter identified the syndrome which we...
Understanding Klinefelter Syndrome, published by Glass Magazine. An all-too-common XXY story - with a happy ending!
Raj Baksi on Guy’s Hospital First Klinefelter’s Syndrome (KS/XXY) Adolescent Clinic
An excellent in-depth article about male infertility from Undark magazine. It discusses the often ignored emotional effect this has on the men affected.
An interesting, thoughtful and realistic story of a KSA member’s experience of KS/XXY in general and infertility in particular.
AmazonSmile is a simple way for you to support the Klinefelter’s Syndrome Association (KSA) every time you shop, at no cost to you. When you shop at smile.amazon.com, you’ll find...
Research
We have been sent a survey which is essentially for professionals who provide care for those affected by KS/XXY. We...
If applicable, please take part in this survey that supports research into men’s experience of pregnancy after fertility treatment.
Below is a really important research questionnaire which we are asking all KS/XXY folk to please complete. It doesn’t take...
Social events
Ryan Bregante is an American XXY adult who has a very positive attitude to KS/XXY. Many of you may have...
James, a KSA member, has organised another of his enjoyable social events for anyone affected by KS/XXY
The KSA is delighted to announce that the 2023 KSA Annual Conference will be held in Derby. Watch this space...
Latest news about Activity Weekends Now taking bookings for 14 to 16 April 2023 The Klinefelter’s Syndrome Association are delighted...
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Klinefelter's Syndrome Association
ENDO-ERN expert opinion on the differential diagnosis of pubertal delay
ENDO-ERN expert opinion on the differential diagnosis of pubertal delay
The differential diagnoses of pubertal delay include hypergonadotropic hypogonadism and congenital hypogonadotropic hypogonadism (CHH), as well as constitutional delay of growth and puberty (CDGP). Distinguishing between CDGP and CHH may be challenging, ...
Klinefelter's Syndrome Association
Video explaining the European Reference Network, despite Brexit the KSA has representatives on the Urology
Information video for patients and healthcare professionals
European Reference Networks. How do they work?Made by the European Commission, 2018.
Our very own Claire and Ken are at the Royal College of GPs (RCGP) conference in Liverpool today and tomorrow to raise awareness of #KlinefeltersSyndrome with GPs. If you are there come and say hello to them! #RCGPAC @RCGPAC https://t.co/b7lNoJxtNW
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Never stop doing little things for others. Sometimes those little things occupy the biggest part of their hearts #KlinefeltersSyndrome #InspirationalQuotes https://t.co/LgQSEqTPbE
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We are delighted to invite you to the first KSA Virtual Conference between 5-6 June 2021. To look at the programme of events and book your FREE tickets via #KlinefeltersSyndrome https://t.co/fGiJAqbmxg
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Your hardest times often lead to the greatest moments in your life. Keep going. Tough situations build strong people in the end #KlinefeltersSyndrome #InspirationalQuotes https://t.co/dU81OPXqBu
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If you need to talk to someone, we are still open for business and here to provide information & support for all those affected by KS and XXY #KlinefeltersSyndrome https://t.co/sUJy8CEFnh
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