Helpline 0300 111 4748

Survey concerning provision of care for people with Variations of Sex Characteristics


We have been sent a survey which is essentially for professionals who provide care for those affected by KS/XXY.  We realise that many of you may work in this type of role in addition to being an XXY person – or someone who has some relationship to an XXY person and we hope that you may be interested in helping with this s short survey. We would be so glad if you can contribute, as the voices of people who care for those with KS/XXY (and other conditions classed as Variations of Sex Characteristics or Intersex) often get left out of the picture.

The survey aims to improve healthcare for people who have variations that are usually known as DSDs in medical settings.  The study is funded by a Marie Skłodowska-Curie European Commission grant (INIA programme, agreement No. 859869) and it has passed ethics approval at the University of Zurich, which leads this project.

The survey is available here.

It covers issues such as the provision of psychosocial support, access to peer support, and barriers to healthcare. The results will be used for academic papers, briefs for policy makers, workshops and other outputs that aim to improve care for this group of people.

The survey will run until 30 October 2022.  We thank you again in advance for your participation.

Recent Posts

Barry (Badger) Duplock

Barry (Badger) Duplock  (6/12/1968-18/6/2023) Barry was born 6 December 1968 to Gladys and Bill Duplock in South Africa. When he was 3, they moved to

Read More

Availability of gels

There still seems to be difficulty obtaining some of the testosterone gels. We have been notified by Androlabs that the supply of Testavan gel has

Read More

KSA Conference 2023

The KSA Annual Conference 2023  was held at the Stuart Hotel in Derby on 13th and 14th of May with the Friday Night Get-together on

Read More