Welcome to KS/XXY for teens.
We hope this will help you to understand what KS/XXY is and how it might affect you.
Growing up can be difficult for everyone – dealing with changes caused by puberty, managing schoolwork, thinking about what work you might enjoy, handling friendships and sex.
We hope that the information we have gathered together for you in this website, will make life a little less confusing.
The effects of KS/XXY vary a lot. 75% of people who have it are never diagnosed.
Chromosomes are genetic material. Males typically have one X and one Y chromosome (XY) and females have two X chromosomes (XX). People with KS have two X chromosomes and one Y chromosome (XXY). This is why the KSA refers to the condition as KS/XXY.
KS/XXY is diagnosed by a genetic blood test which identifies the karyotype i.e. the number, size and shape of the chromosomes.
Although the condition is relatively common, not many people understand it..
If you would like to talk to someone please call our Helpline:
Please remember that as the KSA is run entirely by volunteers. Sometimes there may not be anyone available to take your call. Please leave a message with your email address or phone number and we will get back to you.
It’s really important to speak to someone if you feel suicidal or you’re worried you’ll harm yourself.
You can call 0800 1111 to talk to a Childline counsellor at any time.
They’re there to help you 24 hours a day, 7 days a week.
If it’s an emergency or you need help straight away, call 999.
