Helpline 0300 111 4748
Helpline 0300 111 4748
Helpline 0300 111 4748
Many medical professionals are unaware how common it is and often fail to diagnose it.
75% of those affected are never diagnosed.
If diagnosed in childhood, appropriate support can ensure the child flourishes and reaches their potential.
Early promotion of a healthy life style can help to avoid many health problems.
Although very few men will be able to father children without assistance, there are techniques already available by which sperm could be extracted from the testes. The procedure is more likely to be successful in younger adults.
People with KS have two X chromosomes and one Y chromosome (XXY). This is why the KSA refers to the condition as KS/XXY.
KS/XXY is diagnosed by a genetic blood test which identifies the karyotype i.e. the number, size and shape of the chromosomes.
Although the condition is relatively common, its effects are not well understood.
If you would like to talk to someone please call our Helpline:
Please remember that as the KSA is run entirely by volunteers. Sometimes there may not be anyone available to take your call. Please leave a message with your email address or phone number and we will get back to you.
If you are feeling suicidal, please contact the Samaritans
They are available 24 hours per day, phone: 116 123 or visit samaritans.org
Through our website and helpline, we provide information and support for all affected by KS/XXY including families, medical professionals, teachers and anyone else who comes into contact with people diagnosed with KS/XXY.
National Helpline: 0300 111 47 48
Our very grateful thanks to Childline for allowing us to link extensively to their website.
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