General Information

"It's your hormones". A qualitative exploration of men's experiences of Klinefelter's syndrome (126.50 KB)

Klinefelter’s Syndrome (KS) is a genetic condition affecting men. It has the potential to:

  • severely reduce testosterone levels
  • affect physical appearance and sexual development and function
  • affect learning and educational development

 

Attribution Matters: The Impact of Klinefelter's Syndrome on Psycho-social Functioning (138.00 KB)

Much of the research on KS has been directed at understanding the cognitive impact even though biomedical researchers and condition specialists continually acknowledge the psychological impact this condition has and the need to address these issues.

 

Draft programme for KSA Virtual Conference 2021 (33.94 KB)

Please note that this is a draft programme. Timings may change!

 

ESA (203 KB)

This document provides information and guidance on applying for Employment and Support Allowance

 

Is the prevalence of Klinefelter’s Syndrome increasing? (105.29 KB)

This version of the paper by Joan K Morris, Eva Alberman, Claire Scott, Patricia Jacobs was abridged by Povl Larsen. The original  was the basis for Dr Jacobs' presentation at the KSA Conference 2007.

 

Klinefelter's Syndrome (KSA leaflet Part 1) (10.10 MB)

This contains general information about Klinefelter's Syndrome/XXY.

The 2 pages of the 6 page should be printed back to back in landscape view.

The two pages of the 4 page should be printed back to back in landscape view.

This download is the 4 page.

Fold into thirds. Staple on first fold.

Cut off blank section.

 

 

Klinefelter's Syndrome (KSA leaflet part 2) (2.54 MB)

This contains general information about Klinefelter's Syndrome/XXY.

The 2 pages of the 6 page should be printed back to back in landscape view.

The two pages of the 4 page should be printed back to back in landscape view.

This download is the 6 page.

Fold into thirds. Staple on first fold.

Cut off blank section.

 

Klinefelter's Syndrome and Fertility - read version (470.87 KB)

This booklet was produced by the KSA in conjunction with Mr Kevin McEleny, consultant urologist and head of department at Newcastle Fertility Centre. It provides information about current fertility options for KS/XXY adults.
There is another layput available which is suitable for printing as a double sided booklet.

 

Klinefelters Syndrome - An Overview (74.40 KB)

The collection of symptoms known as Klinefelter syndrome was first put together in 1942 by a young doctor in Philadelphia called Harry Klinefelter. He described 9 men who had breast development, small testicles with no sperm in their semen, and a blood test revealed raised levels of the factors (gonadotrophins) which try to stimulate the testicles to produce more of the male hormone (testosterone) and greater numbers of sperm.

 

KS and Fertility (469.05 KB)

This booklet was produced by the KSA in conjunction with Mr Kevin McEleny, consultant urologist and head of department at Newcastle Fertility Centre. It provides information about current fertility options for KS/XXY adults.
This layput is suitable for printing as a double sided booklet.
An alternative layout, more suitable for on-line reading, is also available.