General Information
Klinefelter's Syndrome and Fertility - read version (470.87 KB)
This booklet was produced by the KSA in conjunction with Mr Kevin McEleny, consultant urologist and head of department at Newcastle Fertility Centre. It provides information about current fertility options for KS/XXY adults.
There is another layput available which is suitable for printing as a double sided booklet.
Klinefelters Syndrome - An Overview (74.40 KB)
The collection of symptoms known as Klinefelter syndrome was first put together in 1942 by a young doctor in Philadelphia called Harry Klinefelter. He described 9 men who had breast development, small testicles with no sperm in their semen, and a blood test revealed raised levels of the factors (gonadotrophins) which try to stimulate the testicles to produce more of the male hormone (testosterone) and greater numbers of sperm.
KS and Fertility (469.05 KB)
This booklet was produced by the KSA in conjunction with Mr Kevin McEleny, consultant urologist and head of department at Newcastle Fertility Centre. It provides information about current fertility options for KS/XXY adults.
This layput is suitable for printing as a double sided booklet.
An alternative layout, more suitable for on-line reading, is also available.
KSA Survey of Members - A Brief Summary (427.66 KB)
In 1999 the KSA carried out a survey of its members to gain a better understanding of their experiences, i.e. 'how I got to where I am today'. The aim was to give some pointers for further research.
This summary is simply the first stage in what could prove to be a long and challenging series of investigations. We have a long way to go but, with your help, we could make a real difference.
Learning Needs of Children with KS - Information for Teachers & Parents (115.25 KB)
Recent years have seen the tide turning in the ways that youngsters with Klinefelter’s Syndrome (KS)/XXY have managed at school. This is reflected in the statistics of the Klinefelter’s Syndrome Association survey which pointed out that, whilst virtually no adults had attended special schools as children, the figure had risen to around 1 in 3 by 1999. There is still a long way to go; many parents still feel the frustration of battling against cash- strapped education authorities for help, and many teachers long for insight into the minds of youngsters with complex needs.
Osteoporosis and KS/XXY (1.19MB)
The document provides an overview of Osteoporosis and its importance in relation to KS/XXY. Please see your doctor/dietician for further details. To obtain a copy of the booklet: Compston J (2006) Understanding Osteoporosis BMA Family Doctor Series (http://www.worldcat.org/title/understanding-osteoporosis/oclc/852121432)
Testosterone Treatment Diary (95.79 KB)
The Psychological and Social Impact of Klinefelter's Syndrome: Report for the KSA (130.50 KB)
Executive Summary, by Marianne Morris, Sue Jackson & Jude Hancock, University of the West of England 2009
(Full report available to Members of the KSA)
Treatment Satisfaction Survey Executive Summary (80.38 KB)
Klinefelter’s Syndrome Treatment Satisfaction Survey
Executive Summary for the Klinefelter’s Syndrome Association
(Full report available to Members of the KSA)
Authors: Georgina Ruddle, Sue Jackson & Marianne Morris
University of the West of England
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