Puberty and beyond
As a KS/XXY young person, puberty might be a little different for you.
Puberty usually starts anywhere between the ages of 9 and 14.
Because of your extra chromosome, your testicles won’t do a great job of producing the hormone, testosterone. This means that you probably won’t develop much body hair and your balls may not grow as much as some other guys’, but everyone is different.
The good news is that you are not as likely to have acne (spots) and you will usually be taller than your parents.
You can ask the medical professional to write down important things or ask if you can record the conversation on your phone, so that you don’t forget important bits.
Medical professionals should be ok with this and with you asking any questions.
If you were diagnosed a while ago, you may have seen an endocrinologist already.
An endocrinologist is a specialist in hormones. They will keep an eye on you to make sure puberty is going ok.
They will usually like to see you once or twice a year.
If you have any questions, they are the people to ask. Always tell them how you really feel – even if they forget to ask!
You can ask to talk to them, or your GP, on your own if you don’t want an adult to go with you. Most will be happy to do this, but check with the surgery first.
It is always a good idea to write a list of things you want to ask, so that you don’t forget.