I never really knew I had KS growing up. I was diagnosed when I was 8 months. My parents say the future was unknown as every individual was different. They say I coped well until my teens.
Every year had to have a check up at the hospital to make sure everything was as it should be. I was discharged when I was 16 and that was that.
In my late teens/early 20s I started to suffer from clinical depression. Every day was an emotional rollercoaster. And then with the support of my family and my GP I learned about KS. I tried numerous forms of testosterone treatment until I found one that worked, and I now have an injection every ten weeks. I’m nearing 40 now, and the impact this has positively had is huge.At first it took a while to get my head around it, we all grow up picturing a family life and so on, I had a fertility test and at the time it really hit me, but now I see things differently.
I can’t have children. That’s how my roadmap is written, but what I can do, is influence people around me. Everyone loves that daft uncle, everyone remembers the daft things that daft uncles do. It’s possibly a blessing that I can’t have children, because the love that I’ve been able to give to two special people who’ll always be in my life, is a love that I couldn’t have imagined and it makes me live every memory they’ll have of their daft uncle, that little bit more.
And within my family, I can therefore influence how my loved ones, think, feel and act when it comes to kids. And let’s be honest we’re all big kids under the right circumstances. Generally speaking, I’m antisocial. I have to be a people person in the job I’m in, but outside of work, I’m very private and outside of my family circle I don’t like to socialise and in honesty don’t like people.
There’s probably some link to KS in struggles I’ve had with my back, and also anxiety, and arguably worse, my teeth, but there’s probably an equal amount of being human in that too.
I’ve read the stories on here, everyone has a different story and has had a different journey. I can completely appreciate people want to get a diagnosis, but if and when you do, see it as a blessing. See it as a blessing it makes you who you are. Take that extra X and turn it into Xtra special. It’s not what you are, it’s who you are.