Full programme for KSA Conference and AGM 2024
Please note that timings are for guidance only and may change on the day.
Delegates attending virtually will be unable to view Workshops 1A, 2A and 3A.
Saturday, 18th May 2024
9.00 – 9.30 Arrive and sign in
9.30 – 9.40 Introduction
9.40 – 10.10 AGM
10.10 – 10.25 Dr. Tet Yap (Urology Consultant and lead at Guy’s and St Thomas’ KS MDT Clinic, London) – an introduction
10.25 – 10.30 Questions
10.30 – 10.45 Ramzy Elnabarawy (Honorary Research Fellow, KS MDT Clinic)- Update on Red Cap KS/XXY database.
10.45 – 10.50 Questions
10.50- 11.05 Charlotte Tomlinson (Genetics Counsellor, KS MDT Clinic)
11.05-11.10 Questions
11.10-11.25 Tea/coffee
11.25- 12.30 Workshop 1A: informal session for KS/XXY Adults with KS MDT Clinic team
Workshop 1B: for parents and carers – Navigating the SEN landscape – Claire Harkin (KSA trustee) representing Spectrum Cambridge.
12.30 -2.00 Lunch
2.00 – 2.10 Welcome back
2.10 – 2.40 Professor Baron-Cohen of will be presenting virtually on a new study about XXY and autistic traits. Dr Deep Adhya will be presenting on XXY and neuroscience. Both are from the Autism Research Centre, Cambridge University.
2.40 – 2.50 Questions
2.50 – 3.10 Dr. Leila Frodsham (Psychosexual Medicine Consultant, KS MDT Clinic).
3.10 – 3.15 Questions
3.15 – 3.30 Dr Saadia Arshad (Consultant Psychiatrist, KS MDT Clinic) – Mental health.
3.30 – 3.35 Questions
3.35 – 3.50 Tea/coffee
3.50 – 4.00 Ibrahim Samy (Research Fellow, KS MDT Clinic) – update on KS Paediatric Clinic.
4.00 – 4.05 Questions
4.05 – 5.05 Workshop 2A: KS/XXY adults – The Ageing KS/XXY male and other questions with Dr. Richard Quinton – foremost endocrine expert in KS/XXY.
4.05 – 5.05 Workshop 2B: Informal questions with KS MDT Clinic team
5.05 – 5.10 Dr. Tet Yap (KS MDT Clinic) – closing remarks.
5.10 – 5.30 Round up of day and raffle
Sunday, 19th May 2024
All timings are approximate and include times for questions.
9.15 – 9.25 Welcome
9.25 – 9.40 Athina Tripli (PhD Student, University of Derby) – KS/XXY and Gender identity
9.40 – 9.55 Chris Breen (Trustee and social media Officer, KSA) – Inclusion, prevalence and attitudes towards gender diversity across intersex.
9.55 – 10.10 Jaskiran Sanghera (Specialist Clinical Pharmacist, KS MDT Clinic) – HRT in KS/XXY.
10.10 – 10.25 Dr Bryan Woodward (Reproductive Specialist, X&Y Fertility, Leicester) -Diagnosing the KS/XXY karyotype.
10.25 – 10.40 Tea/Coffee
10.40 – 10.55 Dr Jenny Retzler (Developmental Psychology Lecturer, Huddersfield University) – Executive Function research in KS/XXY and future studies.
10.55 – 11.25. Elliot Polak (President, My XXY/Chromodiversity Foundation) -Families and Clinics: Developing gold standard tools to help families and clinicians support children with genetic differences.
11.25 – 12.30 Workshop 3A: Mike Green (trustee and past treasurer of KSA) and Paul Dutton (incoming and past Chairman of KSA) on help in the workplace.
Workshop 3B: Dr Fiona Peacock (BACP Senior Accredited Counsellor/Psychotherapist) – Supporting your Child’s Mental Health and Emotional Wellbeing.
12.30 – 12.40 Close