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James, a KSA member, has organised another of his enjoyable social events for anyone affected by KS/XXY. KS/XXY adults, young adults and their parents/carers are all welcome.
This is a great opportunity to have an enjoyable day out with people who know how you feel.
Very informal – probably lunch, a drink and a wander.
It will take place at Rudyard Lake on 22nd October 2022, meeting at 11.00.
For more information and to register an interest, please email: vicechair@ksa-uk.net
10th May is Klinefelter’s Syndrome Awareness Day in the UK Klinefelter’s Syndrome affects 1 in 600 males but 75% are never diagnosed. Klinefelter’s Syndrome isn’t rare…..but it is rarely diagnosed. Please help us to change that by telling a doctor, a
KSA Conference 2023 The KSA are delighted to send present the draft programme and ticket information for the 2023 KSA Conference. There is a very full programme with medical professionals from not one, but BOTH London multi-disciplinary clinics (MDC). The
The KSA Annual Conference 2023 was held at the Stuart Hotel in Derby on 13th and 14th of May with the Friday Night Get-together on the 12th May 2023. Speakers included a range of medical professionals from the Klinefelter Syndrome
Researchers at the University of Huddersfield are studying people with KS/XXY syndrome and their experiences of every-day skills like memory, paying attention, and controlling impulses. Although this is a very important aspect of KS/XXY, there has been very little research
There is currently some disruption to supplies of Tostran gel. If your pharmacy is having difficulty obtaining it, please tell them to phone the suppliers, Kyowa Kirin Ltd on: 01896 664 000. They will be able to help source supplies.
The KSA hosts regular ‘virtual chats’ to allow members to chat, ask questions, suggest, discuss, have a moan – or a laugh. These ‘chats’ are a ‘safe place’. Nothing is recorded, if you prefer just to listen, that’s fine. For