Welcome to the first Klinefelter’s Syndrome Awareness Day – brought to you by the Klinefelter’s Syndrome Association (KSA).
It is 80 years since Harry Klinefelter identified the syndrome which we now know is caused by an extra X chromosome in males but 75% of those affected are still never diagnosed.
KS/XXY isn’t rare….but it is rarely diagnosed. Please help us change this by watching and sharing our great video by Jim (AJ) Howard, one of our trustees and his puppets.
There is currently some disruption to supplies of Tostran gel. If your pharmacy is having difficulty obtaining it, please tell them to phone the suppliers,
The KSA hosts regular ‘virtual chats’ to allow members to chat, ask questions, suggest, discuss, have a moan – or a laugh. These ‘chats’ are
Ryan Bregante is an American XXY adult who has a very positive attitude to KS/XXY. Many of you may have seen his website: A Community
James, a KSA member, has organised another of his enjoyable social events for anyone affected by KS/XXY
We have been sent a survey which is essentially for professionals who provide care for those affected by KS/XXY. We realise that many of you
Through our website and helpline, we provide information and support for all affected by KS/XXY including families, medical professionals, teachers and anyone else who comes into contact with people diagnosed with KS/XXY.
National Helpline: 0300 111 47 48
Our very grateful thanks to Childline for allowing us to link extensively to their website.
© 2022 Klinefelter’s Syndrome Association
Photographs from this site must not be reproduced
