Government Consultation on SEND reform proposals
Your opportunity to have your voice heard. The KSA is providing options to help you to have your say about this extremely important review. Please click here for further information.
The Psychologist
Raising Psychologists’ Awareness of KS/XXY. Dr. Jenny Retzler, whom many of you may have met at KSA conferences, has had an article accepted by The Psychologist. It highlights the difficulties faced by many of those affected by KS/XXY and the need for psychological support. The Psychologist is the official publication of The British Psychological Society […]
KSA Annual Conference & AGM 8th – 10th May 2026
This year’s conference focus will be on practical and positive day-to-day support. We have worked towards having three strand running concurrently, so whether you are an individual with KS / XXY, a partner or parent or carer, supporting a friend/family member with KS / XXY, we hope to have something that will appeal to all. […]
Research on quality of life with KS/XXY
Research on quality of life with KS/XXY My name is Brien Mehmet, and I am a PhD student at City, St George’s University of London. Many of you will have met me at recent KSA Conferences. I am collaborating with the Klinefelter’s Syndrome Association (KSA) on a research study looking at Quality of Life in […]
Forensic research
Vital research on KS/XXY in the justice system. Please help! The KSA are working with two forensic psychologists to look at why some KS/XXY people get involved in the justice system. The psychologists have recruited one of their MSc students, Harry Evans, to carry out research looking at the perceptions of those who have worked with KS/XXY guys in some capacity in the […]
Activity Weekend 2026 – Derbyshire
The Klinefelter’s Syndrome Association are delighted to announce that following the success of the 2024 Activity Weekends we are now taking bookings for 2025.
Tostran gel
There is currently some disruption to supplies of Tostran gel. If your pharmacy is having difficulty obtaining it, please tell them to phone the suppliers, Kyowa Kirin Ltd on: 01896 664 000. They will be able to help source supplies.
News: Nonmosaic Klinefelter Syndrome Successful Conception after TESE/ICSI: A case report
You may be interested in the following article and case study that looks at Non-mosaic Klinefelter Syndrome Successful Conception after TESE/ICSI: A case report from Egypt. You can view it here.
KS patients younger than 16 should not be offered fertility preservation
Klinefelter syndrome (KS) patients younger than 16 should not be offered fertility preservation, according to a new evidence review. NEW YORK (Reuters Health) – Klinefelter syndrome (KS) patients younger than 16 should not be offered fertility preservation, according to a new evidence review. Germ cell retrieval rate by testicular sperm extraction (TESE) is far lower […]