Klinefelter's Syndrome Association UK

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History of the KSA &KS

The Klinefelter's Syndrome Association (KSA) was founded in 1990 and achieved Registered Charity status in 1996. It exists to support all those affected by Klinefelter's Syndrome (KS) whether they are men and boys who have the syndrome, or their wives, partners, parents, grandparents, brothers, sisters, carers and friends.

Klinefelter's Syndrome is a common condition found in around 1 in 650 live male births and is a congenital condition present from conception. The condition is caused by the presence of one or more additional 'X' chromosomes.

The Association seeks to assist everyone who comes into contact with Klinefelter's Syndrome. Of course, that goes beyond those who live with KS everyday; this could be a teacher searching for ways to put together an educational action plan for a boy with KS, a doctor or other health professional seeking to put a patient in contact with someone with more experience, or anyone else who needs to know more.

In seeking to preserve and promote the health and the welfare of all persons affected by Klinefelter's Syndrome the Association seeks to raise the profile of the condition with the medical profession, other public and private bodies and the general public so that all understand its implications, not only for the individual affected, but also for all those with whom they have contact during their lives.

For more information - Join the KSA

Charity no. 1058319

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