Helpline 0300 111 4748

Useful links

Mental health

MIND - for better mental health

Provides a wide range of support and information including help during the Covid crisis

https://www.mind.org.uk/information-support/a-z-mental-health/

Rethink - mental illness

Welcome to Rethink Mental Illness. We help millions of people affected by mental illness by challenging attitudes, changing lives.

https://www.rethink.org

We provide expert, accredited advice and information to everyone affected by mental health problems.
We have over 200 mental health services and 150 support groups across England.
About Rethink Mental Illness

Royal College of Psychiatrists

The RCPYCH has excellent booklets on a wide range of subjects relating to mental health.

https://www.rcpsych.ac.uk/usefulresources.aspx

Just Ask Any Question (JAAQ)

 

Get answers on mental health from world leading experts and those with lived experience.

A variety of webinars.https://jaaq.org/

General information

Prince's Trust

Confidence building courses, help to get into work or start your own business. from 16 to 30 years of age.

Some KSA members have already benefitted from this.

https://www.princes-trust.org.uk/help-for-young-people

Asperger's Syndrome Foundation

Many KS/XXY folk may be on the autistic spectrum. KS isn’t recognised as a disability as symptoms vary so much but if you have an additional, better known condition such as Asperger’s or dyslexia it may be easier to get support and possibly benefits.

www.aspergerfoundation.org.uk
Welcome to the website of the Asperger’s Syndrome Foundation. We are a small registered charity based in central London, England. We do hope that you will find our site helpful and informative. We will update it regularly.

The Asperger’s Syndrome Foundation is committed to promoting awareness and understanding of Asperger’s Syndrome. The Foundation aims to promote high quality support and services, and to enable people with Asperger’s syndrome to develop into members of the community who are respected for their contribution and recognised for their unique differences.

Mencap

Mencap is the leading voice of learning disability. They work in partnership with people with a learning disability, and all their services support people to live life as they choose.

https://www.mencap.org.uk/

The Princess Royal Trust for Carers

The Carers’ Trust provides information, support and advice for carers.

www.carers.org.uk

Support in further education

As some KS/XXY people find it difficult  to work quickly/organise themselves, they may be able to access support at university or college.

https://www.studying-in-uk.org/studying-in-uk-as-a-student-with-disabilities/

Career changes or updating skills

The National Careers Service is completely free and accessible to anyone aged 13+ and living in England. To access the service call 0800 100 900 or visit https://nationalcareers.service.gov.uk/
Support is available to everyone whether in employment, on furlough or unemployed.
If you are unemployed or furloughed, this free service can support you to:
• Update your CV
• Develop online interview skills
• Get new qualifications
• Plan your next career step

Disability Rights UK

Lots of useful fact sheets and guides. 

The KSA is a member.

www.disabilityrightsuk

Disability Law Service

Disability Law Service is a unique charity that has been providing  free legal advice and representation for disabled people since 1975.

Disability Law Service (dls.org.uk)

Hft

Hft is a national charity providing services for people with learning disabilities. They can provide support from just a couple of hours a week up to 24 hours a day. 

Hft.org.uk

Healthy eating

Food and nutrition is part of everyday life. Most of us in this country take it for granted.

We also know that what we eat affects our health no matter what age we are and no matter whether we are well or have a disease or condition such as cancer, diabetes, irritable bowel syndrome, or another.

We are surrounded by information about food and nutrition but often we need help to make the right food choices to maximise our health and know what’s fact or fiction.
https://www.bda.uk.com/food-health/your-health.html

KS/XXY Specific Websites

Chromodiversity

Dedicated to raising positive awareness of common but underdiagnosed genetic differences, working hard to improve lives and unlock futures. 

My XXY Chromodiversity Foundation

Living with XXY

We are working together to provide awareness through personal connections, reinforce positivity and influence change through strategic partnerships. 

A Community For Klinefelter Syndrome - Living with XXY Non-Profit

AXYS

The Association for X and Y Variations (AXYS) is a USA based advocacy, education and support organization for individuals with X and Y chromosome variations and their families. AXYS was formerly known as Klinefelter Syndrome and Associates (KS&A).

https://genetic.org/