Common health issues

There is little research into the incidence of health issues which affect KS/XXY children. These are the most commonly reported.

As there is an increased risk of osteoporosis in KS/XXY adults, it is  particularly important to look after your child's bone health. For more information see here.

Ask your GP about vitamin D supplements. Load-bearing exercise such as walking, football, dancing will help to build up good bone density.

For more information visit the Royal Osteoporosis Society

The incidence of diabetes type 1 and 2 associated with KS/XXY is three times higher than in the general population. The reason for this isn't fully understood.

To minimise the risk of type 2 diabetes, it is  particularly important to encourage a  healthy diet  - and discourage sugar, fizzy drinks and snacking.

Regular exercise is also likely to help fitness and to maintain a healthy weight.

Although most autoimmune diseases usually affect women, those with KS/XXY appear to have an increased risk compared to XY males.

A study of patients with lupus indicated that  KS/XXY  adults have the same risk as  females.

It is thought that this increased risk may be  related to the the extra chromosome.

Other autoimmune diseases include rheumatoid arthritis, psoriasis and inflammatory bowel syndrome (IBS).

There is an increased risk of conditions such as  bronchitis although the reason for this isn’t known. Children generally grow out of this.

Particularly in the 15 to 30 age group, there is an increased risk of some cancers - germ cell, lung, testicular, Hodgkin lymphoma and breast cancer. For more about breast cancer, see 'common symptoms'.

Taurodontism is rare condition which appears to be more prevalent in those with KS/XXY. It affects mainly  the development of the molar teeth in such a way that the body of the tooth is enlarged. As it may not show up in an examination without an x-ray, you should  inform your dentist of the  KS/XXY diagnosis.

Sometimes the jaw is smaller than is usual. This may cause additional problems.

Oral hygiene is particularly important. Do tell your dentist about the KS/XXY diagnosis.

Possibly because of poor muscle tone, many KS/XXY folk have a rather unbalanced way of walking. Physiotherapy and keeping active will help.